Design and implementation of electronic health record common data elements for pediatric epilepsy: Foundations for a learning health care system

Author:

Grinspan Zachary M.1ORCID,Patel Anup D.2ORCID,Shellhaas Renée A.3ORCID,Berg Anne T.45ORCID,Axeen Erika T.6,Bolton Jeffrey78,Clarke David F.9,Coryell Jason10,Gaillard William D.11ORCID,Goodkin Howard P.6,Koh Sookyong12ORCID,Kukla Alison13,Mbwana Juma S.11,Morgan Lindsey A.1415,Singhal Nilika S.16,Storey Margaret M.17,Yozawitz Elissa G.18ORCID,Abend Nicholas S.1920ORCID,Fitzgerald Mark P.1920ORCID,Fridinger Sara E.1920,Helbig Ingo19202122,Massey Shavonne L.1920,Prelack Marisa S.1920,Buchhalter Jeffrey23ORCID,

Affiliation:

1. Departments of Population Health Sciences and Pediatrics Weill Cornell Medicine New York NY USA

2. Division of Neurology Nationwide Children's Hospital Columbus OH USA

3. Department of Pediatrics (Pediatric Neurology) Michigan Medicine University of Michigan Ann Arbor MI USA

4. Division of Neurology Epilepsy Center Ann & Robert H. Lurie Children's Hospital of Chicago Chicago IL USA

5. Department of Pediatrics Northwestern Feinberg School of Medicine Chicago IL USA

6. Department of Neurology University of Virginia Charlottesville VA USA

7. Harvard Medical School Boston MA USA

8. Division of Epilepsy and Clinical Neurophysiology Department of Neurology Boston Children's Hospital Boston MA USA

9. Division of Pediatric Neurology Department of Neurology Dell Medical School University of Texas at Austin Austin TX USA

10. Departments of Pediatrics and Neurology Oregon Health and Sciences University Portland OR USA

11. Department of Neurology Children's National Health System and School of Medicine George Washington University Washington DC USA

12. Department of Pediatrics Emory Children's Center Emory University School of Medicine Atlanta GA USA

13. Epilepsy Foundation Landover MD USA

14. Center for Integrative Brain Research Seattle Children's Research Institute Seattle WA USA

15. Departments of Pediatrics and Neurology Seattle Children's Hospital University of Washington Washington DC USA

16. Departments of Neurology and Pediatrics UCSF Benioff Children's Hospital University of California San Francisco CA USA

17. Department of History College of Liberal Arts and Social Sciences DePaul University Chicago IL USA

18. Saul Korey Department of Neurology Montefiore Medical Center and Albert Einstein College of Medicine Bronx NY USA

19. Division of Neurology Children's Hospital of Philadelphia Philadelphia PA USA

20. Department of Neurology Perelman School of Medicine University of Pennsylvania Philadelphia PA USA

21. Epilepsy NeuroGenetics Initiative Children's Hospital of Philadelphia Philadelphia PA USA

22. Department of Biomedical and Health Informatics Children's Hospital of Philadelphia Philadelphia PA USA

23. Department of Neurology St Joseph's Hospital and Medical Center Phoenix AZ USA

Funder

Pediatric Epilepsy Research Foundation

Epilepsy Foundation

Publisher

Wiley

Subject

Neurology (clinical),Neurology

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