Utilizing patient advocates in Parkinson’s disease: A proposed framework for patient engagement and the modern metrics that can determine its success

Author:

Feeney Megan1ORCID,Evers Christiana1,Agpalo Danielle1,Cone Lisa1,Fleisher Jori2,Schroeder Karlin1

Affiliation:

1. Parkinson’s Foundation New York New York

2. Section of Movement Disorders Department of Neurological Sciences Rush University Medical Center Chicago Illinois

Publisher

Wiley

Subject

Public Health, Environmental and Occupational Health

Reference27 articles.

1. Food and Drug Administration.Evolution of patient engagement at FDA text description.FDA.gov.https://www.fda.gov/patients/learn‐about‐fda‐patient‐engagement/evolution‐patient‐engagement‐fda‐text‐description. Published April 2019. Accessed July 30 2019.

2. Patient‐Centered Outcomes Research Institute.Our Story.2017.https://www.pcori.org/about‐us/our‐story. Accessed July 30 2019.

3. Patient Engagement In Research: Early Findings From The Patient-Centered Outcomes Research Institute

4. Food and Drug Administration.Patient‐focused drug development: disease area meetings held in fiscal years 2013‐2017.2018.https://www.fda.gov/industry/prescription‐drug‐user‐fee‐amendments/patient‐focused‐drug‐development‐disease‐area‐meetings‐held‐fiscal‐years‐2013‐2017. Accessed July 30 2019.

5. Food and Drug Administration.Initiatives for patients to engage with FDA.2018.https://www.fda.gov/patients/learn‐about‐fda‐patient‐engagement/initiatives‐patients‐engage‐fda. Accessed July 30 2019.

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