General knowledge and opinion of future health care and non-health care professionals on rare diseases-Reference-Cited by-同舟云学术

General knowledge and opinion of future health care and non-health care professionals on rare diseases

Published:2014-11-03 Issue:2 Volume:21 Page:198-201
ISSN:1356-1294
Container-title:Journal of Evaluation in Clinical Practice
language:en
Short-container-title:J Eval Clin Pract

Author:

Ramalle-Gómara Enrique¹,Ruiz Elena¹,Quiñones Carmen¹,Andrés Sergio²,Iruzubieta Javier²,Gil-de-Gómez Josefa³

Affiliation:

1. Department of Epidemiology (SpainRDR Project); La Rioja Regional Authority; Logroño La Rioja Spain

2. University of La Rioja; Logroño La Rioja Spain

3. Teaching Unit of the Healthcare System of La Rioja; Logroño La Rioja Spain

Funder

Institute of Health Carlos III

Publisher

Wiley

Subject

Public Health, Environmental and Occupational Health,Health Policy

Link

http://onlinelibrary.wiley.com/wol1/doi/10.1111/jep.12281/fullpdf

Reference15 articles.

1. Eurordis 2006 What is a rare disease? Fact sheet http://www.eurordis.org/publication/what-rare-disease

2. MedlinePlus Website 2014 Rare diseases http://www.nlm.nih.gov/medlineplus/rarediseases.html

3. Global Genes website 2014 «RARE Facts and Statistics.» http://globalgenes.org/rarefacts/

4. ISEBOX Ltd/Shire 2014 Rare disease impact report http://www.rarediseaseimpact.com

5. Physician and patient perceptions regarding physician training in rare diseases: the need for stronger educational initiatives for physicians;Engel;Journal of Rare Disorders,2013

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