A qualitative study exploring nurses' experiences of supporting South Asian people with dementia and their family carers

Author:

Jenkins Catharine1ORCID,Kamal Atiya1ORCID

Affiliation:

1. Birmingham City University Birmingham UK

Abstract

AbstractAimsTo explore nurses' experiences of providing support to South Asian (SA) people with dementia and their family carers and to identify barriers and enablers of good transcultural care.DesignA qualitative, phenomenological design was used.MethodsFifteen registered community and in‐patient nurses were recruited via one NHS Mental Health Foundation Trust. Nurses were from diverse backgrounds (Black, Ghanaian, Irish, Mauritian and White), 13 females and 2 males, and had been qualified from between 2 and 49 years. One‐to‐one semi‐structured interviews were conducted between July and October 2019.ResultsA thematic analysis identified three themes. ‘Communication challenges’ highlighted the impact of language barriers and the consequences of misunderstandings due to a dissonance in cultural values between nurses and interpreters. ‘The bi‐directional impact of culture’ identified the two‐way dynamics of transcultural work, the process of countering mutual stigma, and revealed an original perspective on how ‘cultural desire’ grows through practice experiences rather than being a prior motivation for learning. ‘Learning experiences’ showed that most learning was informal, experiential and prolonged, with nurses feeling they had unmet learning needs.ConclusionNurses have minimal training opportunities and are under‐supported in their transcultural work, potentially perpetuating the disadvantages that SA people with dementia and their families face in relation to healthcare. Enhanced cultural understanding of self and others and application of specific communication strategies could support nurses, together with interpreters, to build rapport and effective working relationships with each other and service users.ImpactTranscultural nursing is a key competency, but nurses experience difficulties with providing care which is recognized as effective by SA family carers. The development of more acceptable and effective services requires improved mutual cultural understanding between nurses, interpreters and families, underpinned by joint brief training interventions, leading to more effective professional communication, better care outcomes and improved satisfaction with services.

Funder

Birmingham City University

Publisher

Wiley

Subject

General Nursing

Reference37 articles.

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3. Alzheimer Europe. (2017).European Dementia Monitor 2017: comparing and benchmarking national dementia strategies and policies.http://alzheimer‐europe.org/Publications/E‐Shop/European‐Dementia‐Monitor‐2017/European‐Dementia‐Monitor‐2017

4. Alzheimer's Disease International. (2022).World Alzheimer Report 2022 Life after diagnosis: Navigating treatment care and support.https://www.alzint.org/u/World‐Alzheimer‐Report‐2022.pdf

5. Alzheimer's Society. (2022).Black Asian and minority ethnic communities and dementia research.https://www.alzheimers.org.uk/for‐researchers/black‐asian‐and‐minority‐ethnic‐communities‐and‐dementia‐research

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