Cross-cultural adaptation and linguistic validation of age-group-specific haemophilia patient-reported outcome (PRO) instruments for patients and parents-Reference-Cited by-同舟云学术

Cross-cultural adaptation and linguistic validation of age-group-specific haemophilia patient-reported outcome (PRO) instruments for patients and parents

Published:2012-11-20 Issue:2 Volume:19 Page:e73-e83
ISSN:1351-8216
Container-title:Haemophilia
language:en
Short-container-title:Haemophilia

Author:

von Mackensen S.¹,Campos I. G.²,Acquadro C.³,Strandberg-Larsen M.⁴

Affiliation:

1. Institute of Medical Psychology; University Medical Centre Hamburg-Eppendorf; Hamburg; Germany

2. MAPI Institute; Lyon; France

3. MAPI Research Trust; Lyon; France

4. Novo Nordisk A/S; Søborg; Denmark

Publisher

Wiley

Subject

Genetics (clinical),Hematology,General Medicine

Link

http://onlinelibrary.wiley.com/wol1/doi/10.1111/hae.12054/fullpdf

Reference49 articles.

1. Haemophilias A and B;Bolton-Maggs;Lancet,2003

2. Definitions in hemophilia. Recommendation of the scientific subcommittee on factor VIII and factor IX of the scientific and standardization committee of the International Society on Thrombosis and Haemostasis;White;Thromb Haemost,2001

3. Orphanet 2012 The Portal for Rare Diseases and Orphan Drugs http://www.orpha.net/consor/cgi-bin/index.php?lng=EN

4. Advances in care of children with hemophilia;Manco-Johnson;Semin Thromb Hemost,2003

5. Update on treatment regimens: prophylaxis versus on-demand therapy;Manco-Johnson;Semin Hematol,2003

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