Involving people with lived experience in developing a core outcome set for implant dentistry research. The Implant Dentistry‐Core Outcomes Sets and Measures (ID‐COSM) project

Author:

Needleman Ian1ORCID,Sanz Mariano2,de Albornoz Ana Carrillo2,Safii Syarida3,Hassan Norul Husna Mohamad3,Qian Shujiao4,Tonetti Maurizio45ORCID

Affiliation:

1. Unit of Periodontology UCL Eastman Dental Institute London UK

2. University Complutense of Madrid ETEP Research Group Madrid Spain

3. Department of Restorative Dentistry Universiti Malaya Kuala Lumpur Malaysia

4. Shanghai Perio Implant Innovation Center, Department of Oral and Maxillofacial Implantology, National Clinical Research Center of Stomatology, Shanghai Ninth People's Hospital, School of Medicine Shanghai Jiao Tong University Shanghai China

5. European Research Group on Periodontology Genoa Italy

Abstract

AbstractAimsThe aims of this project were to establish the outcomes for dental implant research that are important to people with lived experience (PWLE) and to achieve consensus with those developed by dental professionals (DPs) for a core outcome set (COS). This paper reports the process, outcomes and experiences of involving PWLE in developing a COS for dental implant research: the Implant Dentistry Core Outcome Sets and Measures project.Materials and MethodsOverall methods were guided by the Core Outcome Set Measures in Effectiveness Trials (COMET) initiative. Initial outcome identification was achieved from focus groups with PWLE employing calibrated methods across two low‐middle‐income countries (China and Malaysia) and two high‐income countries (Spain and the United Kingdom). Following consolidation of the results, the outcomes were incorporated into a three‐stage Delphi process with PWLE participation. Finally, consensus between PWLE and DPs was achieved using a mixed live and recorded platform. The experiences of PWLE involvement in the process was also evaluated.ResultsThirty‐one PWLE participated in four focus groups. Thirty‐four outcomes were suggested across the focus groups. Evaluation of the focus groups revealed a high level of satisfaction with the engagement process and some new learning. Seventeen PWLE contributed to the first 2 Delphi rounds and 7 to the third round. The final consensus included 17 PWLE (47%) and 19 DPs (53%). Out of the total of 11 final consensus outcomes considered essential by both PWLE and health professionals, 7 (64%) outcomes mapped across to ones that PWLE initially identified, broadening their definition. One outcome (PWLE effort required for treatment and maintenance) was entirely novel.ConclusionsWe conclude that engaging PWLE in COS development can be achieved across widely different communities. Furthermore, the process both broadened and enriched overall outcome consensus, yielding important and novel perspectives for health‐related research.

Publisher

Wiley

Subject

Oral Surgery

Reference19 articles.

1. Patient participation in Delphi surveys to develop core outcome sets: systematic review

2. Barrington H. J. Gorst S. L. Horobin A. Morris C. Morris D. Smith M. Turner J. Williamson P. R. &Young B.(2022).Patient and public involvement in designing delivering and disseminating core outcome set (COS) studies what does it look like? – An animation.https://www.youtube.com/watch?v=znJ5BxvYQaQ

3. Participating in core outcome set development via Delphi surveys: qualitative interviews provide pointers to inform guidance

4. A Critical Comparison of Offline Focus Groups, Online Focus Groups and E-Delphi

5. Capturing patient benefits of treatment;Carr A. J.;The International Journal of Oral & Maxillofacial Implants,2011

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