A decision aid to support family carers of people living with dementia towards the end‐of‐life: Coproduction process, outcome and reflections

Author:

Davies Nathan12,Sampson Elizabeth L.23,West Emily2,DeSouza Tanisha1,Manthorpe Jill45,Moore Kirsten26,Walters Kate1,Dening Karen Harrison7,Ward Jane8,Rait Greta1

Affiliation:

1. Department of Primary Care and Population Health, Royal Free Campus University College London London UK

2. Marie Curie Palliative Care Research Department University College London London UK

3. Barnet, Enfield and Haringey Mental Health Trust, Liaison Psychiatry Team North Middlesex University Hospital London UK

4. NIHR Policy Research Unit in Health and Social Care Workforce, Policy Institute at King's King's College London London UK

5. NIHR Applied Research Collaborative (ARC) South London King's College London London UK

6. National Ageing Research Institute Parkville Victoria Australia

7. Dementia UK & Admiral Nursing London UK

8. Family Carer, Member of Experts by Experience Panel

Funder

Alzheimer's Society

Publisher

Wiley

Subject

Public Health, Environmental and Occupational Health

Reference57 articles.

1. Alzheimer's Society.Dementia UK: Second edition. London;2014.

2. LewisF Karlsberg SchafferS SussexJ O'NeillP CockcroftL.The Trajectory of Dementia in the UK ‐ Making a Difference. London;2014.

3. Family caregivers’ conceptualisation of quality end-of-life care for people with dementia: A qualitative study

4. Reconsidering the term ‘carer’: a critique of the universal adoption of the term ‘carer’

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