Addressing patient education priorities in the era of gene therapy for haemophilia: Towards evidence‐informed shared decision‐making
Author:
Affiliation:
1. On The Pulse Consultancy Cambridge UK
2. Brighton and Sussex Medical School Brighton UK
3. Rutgers, The State School of New Jersey New Brunswick NJ USA
Publisher
Wiley
Subject
Genetics (clinical),Hematology,General Medicine
Link
https://onlinelibrary.wiley.com/doi/pdf/10.1111/hae.14214
Reference16 articles.
1. Gene therapy 1·0 in haemophilia: effective and safe, but with many uncertainties
2. The 1st WFH Gene Therapy Round Table: Understanding the landscape and challenges of gene therapy for haemophilia around the world
3. Public Acceptability of Gene Therapy and Gene Editing for Human Use: A Systematic Review
4. Hemophilia gene therapy knowledge and perceptions: Results of an international survey
5. Patient Perspectives on Novel Treatments in Haemophilia: A Qualitative Study
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1. Barriers to gene therapy, understanding the concerns people with haemophilia have: an exigency sub-study;Orphanet Journal of Rare Diseases;2024-02-10
2. Exploring patient and clinician perspectives on the benefits and risks of emerging therapies for the treatment of haemophilia: a qualitative study;The Journal of Haemophilia Practice;2024-01-01
3. Gene Therapy for Hemophilia A: A Mixed Methods Study of Patient Preferences and Shared Decision-Making;Patient Preference and Adherence;2023-04
4. How to translate and implement the current science of gene therapy into haemophilia care?;Therapeutic Advances in Hematology;2023-01
5. Shared decision-making for gene therapy in haemophilia care;The Journal of Haemophilia Practice;2023-01-01
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