The role of cerebral palsy registries in improving patient care and collaboration: A global perspective
Author:
Affiliation:
1. Oslo University Hospital, Department of Paediatric and Adolescent Medicine National Resource Centre for Cystic Fibrosis Oslo Norway
Publisher
Wiley
Subject
Neurology (clinical),Developmental Neuroscience,Pediatrics, Perinatology and Child Health
Link
https://onlinelibrary.wiley.com/doi/pdf/10.1111/dmcn.15814
Reference5 articles.
1. Registries for Evaluating Patient Outcomes: A User’s Guide
2. Using Big Data to Emulate a Target Trial When a Randomized Trial Is Not Available;Hernán MA;Am J Epidemiol.,2016
3. Cerebral palsy registers around the world: A survey;Goldsmith S;Dev Med Child Neurol.,2023
4. An international survey of cerebral palsy registers and surveillance systems;Goldsmith S;Dev Med Child Neurol.,2016
5. The European Cystic Fibrosis Society Patient Registry: valuable lessons learned on how to sustain a disease registry;Viviani L;Orphanet J Rare Dis.,2014
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