Thriving alongside cystic fibrosis: Developing a grounded theory of empowerment in children and young people with cystic fibrosis during key life transitions
Author:
Affiliation:
1. Salomons Institute for Applied Psychology Canterbury Christ Church University Kent UK
2. Sussex Partnership NHS Foundation Trust Sussex UK
3. Royal Alexandra Children's Hospital Brighton UK
4. Addenbrooke's Hospital Cambridge UK
Publisher
Wiley
Subject
Public Health, Environmental and Occupational Health,Developmental and Educational Psychology,Pediatrics, Perinatology and Child Health
Link
https://onlinelibrary.wiley.com/doi/pdf/10.1111/cch.12860
Reference33 articles.
1. Patient empowerment in young persons with chronic conditions: Psychometric properties of the Gothenburg Young Persons Empowerment Scale (GYPES)
2. Supporting cystic fibrosis disease management during adolescence: the role of family and friends
3. Conceptualising patient empowerment: a mixed methods study
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1. Children's participation rights and the role of pediatric healthcare teams: A critical review;Journal of Pediatric Nursing;2024-07
2. Standards for the care of people with cystic fibrosis; establishing and maintaining health;Journal of Cystic Fibrosis;2023-12
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