The diabetes management experiences questionnaire: Psychometric validation among adults with type 1 diabetes

Author:

Hendrieckx Christel123ORCID,Husin Hanafi M.12,Russell‐Green Sienna12,Halliday Jennifer A.123,Lam Benjamin124,Trawley Steven256ORCID,McAuley Sybil A.567ORCID,Bach Leon A.89,Burt Morton G.1011,Cohen Neale D.121314ORCID,Colman Peter G.615,Holmes‐Walker D. Jane1617ORCID,Jenkins Alicia J.6718,Lee Melissa H.67,McCallum Roland W.19,Stranks Steve N.1011,Sundararajan Vijaya6,Jones Tim W.202122ORCID,O'Neal David N.67ORCID,Speight Jane123ORCID,

Affiliation:

1. School of Psychology Deakin University Victoria Geelong Australia

2. The Australian Centre for Behavioural Research in Diabetes Victoria Carlton Australia

3. Institute for Health Transformation Deakin University Victoria Geelong Australia

4. Education Futures University of South Australia Adelaide Australia

5. The Cairnmillar Institute Melbourne Australia

6. Department of Medicine University of Melbourne Melbourne Australia

7. Department of Endocrinology and Diabetes St Vincent's Hospital Melbourne Melbourne Australia

8. Department of Endocrinology and Diabetes The Alfred Melbourne Australia

9. Department of Medicine (Alfred Medical Research and Education Precinct) Monash University Melbourne Australia

10. Southern Adelaide Diabetes and Endocrine Services Flinders Medical Centre Adelaide Australia

11. College of Medicine and Public Health Flinders University Adelaide Australia

12. Baker Heart and Diabetes Institute Melbourne Australia

13. School of Public Health and Preventive Medicine, Faculty of Medicine, Nursing and Health Sciences Monash University Melbourne Australia

14. School of Pharmacy University of Queensland Woolloongabba Australia

15. Department of Diabetes and Endocrinology Royal Melbourne Hospital Melbourne Australia

16. Department of Diabetes and Endocrinology Westmead Hospital Sydney Australia

17. Sydney Medical School University of Sydney Sydney Australia

18. NHMRC Clinical Trials Centre University of Sydney Sydney Australia

19. Department of Diabetes and Endocrinology Royal Hobart Hospital Hobart Australia

20. Department of Endocrinology and Diabetes Perth Children's Hospital Perth Australia

21. School of Paediatrics and Child Health University of Western Australia Perth Australia

22. Telethon Kids Institute University of Western Australia Perth Australia

Abstract

AbstractAimsTo examine the psychometric properties of the Diabetes Management Experiences Questionnaire (DME‐Q). Adapted from the validated Glucose Monitoring Experiences Questionnaire, the DME‐Q captures satisfaction with diabetes management irrespective of treatment modalities.MethodsThe DME‐Q was completed by adults with type 1 diabetes as part of a randomized controlled trial comparing hybrid closed loop (HCL) to standard therapy. Most psychometric properties were examined with pre‐randomization data (n = 149); responsiveness was examined using baseline and 26‐week follow‐up data (n = 120).ResultsPre‐randomization, participants' mean age was 44 ± 12 years, 52% were women. HbA1c was 61 ± 11 mmol/mol (7.8 ± 1.0%), diabetes duration was 24 ± 12 years and 47% used an insulin pump prior to the trial. A forced three‐factor analysis revealed three expected domains, that is, ‘Convenience’, ‘Effectiveness’ and ‘Intrusiveness’, and a forced one‐factor solution was also satisfactory. Internal consistency reliability was strong for the three subscales ( range = 0.74–0.84) and ‘Total satisfaction’  = 0.85). Convergent validity was demonstrated with moderate correlations between DME‐Q ‘Total satisfaction’ and diabetes distress (PAID: rs = −0.57) and treatment satisfaction (DTSQ; rs  = 0.58). Divergent validity was demonstrated with a weak correlation with prospective/retrospective memory (PRMQ: rs = −0.16 and − 0.13 respectively). Responsiveness was demonstrated, as participants randomized to HCL had higher ‘Effectiveness’ and ‘Total satisfaction’ scores than those randomized to standard therapy.ConclusionsThe 22‐item DME‐Q is a brief, acceptable, reliable measure with satisfactory structural and construct validity, which is responsive to intervention. The DME‐Q is likely to be useful for evaluation of new pharmaceutical agents and technologies in research and clinical settings.

Funder

Australian Research Council

Juvenile Diabetes Research Foundation Australia

National Health and Medical Research Council

Publisher

Wiley

Subject

Endocrinology,Endocrinology, Diabetes and Metabolism,Internal Medicine

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