The Caring Life Course Theory: Opening new frontiers in care—A cardiac rehabilitation example

Author:

Pinero de Plaza Maria Alejandra12ORCID,Hutchinson Claire1ORCID,Beleigoli Alline1ORCID,Tieu Matthew13ORCID,Lawless Michael1ORCID,Conroy Tiffany12ORCID,Feo Rebecca1ORCID,Clark Robyn A.12ORCID,Dafny Hila1ORCID,McMillan Penelope4,Allande‐Cussó Regina5ORCID,Kitson Alison A.1ORCID

Affiliation:

1. Caring Futures Institute, College Nursing and Health Sciences Flinders University Adelaide South Australia Australia

2. The Mparntwe Centre for Evidence in Health Flinders University: A JBI Centre of Excellence Alice Springs Northwest Territories Australia

3. Adelaide Health Simulation The University of Adelaide Adelaide South Australia Australia

4. Health Consumer Advocate with Lived Experience in Multimorbidity Disease Management Adelaide South Australia Australia

5. Nursing Department, Nursing, Physiotherapy and Podiatry School University of Seville Seville Spain

Abstract

AbstractAim(s)To operationalize the Caring Life Course Theory (CLCT) as a framework for improving cardiac rehabilitation (CR) engagement and informing ways to address disparities in rural, low socio‐economic areas.MethodsA secondary analysis of data collected from 15 CR programmes to identify CR patterns through the CLCT lens using a mixed‐methods approach. All analytical processes were conducted in NVivo, coding qualitative data through thematic analysis based on CLCT constructs. Relationships among these constructs were quantitatively assessed using Jaccard coefficients and hierarchical clustering via dendrogram analysis to identify related clusters.ResultsA strong interconnectedness among constructs: ‘care from others’, ‘capability’, ‘care network’ and ‘care provision’ (coefficient = 1) highlights their entangled crucial role in CR. However, significant conceptual disparities between ‘care biography’ and ‘fundamental care’ (coefficient = 0.4) and between ‘self‐care’ and ‘care biography’ (coefficient = 0.384615) indicate a need for more aligned and personalized care approaches within CR.ConclusionThe CLCT provides a comprehensive theoretical and practical framework to address disparities in CR, facilitating a personalized approach to enhance engagement in rural and underserved regions.ImplicationsIntegrating CLCT into CR programme designs could effectively address participation challenges, demonstrating the theory's utility in developing targeted, accessible care interventions/solutions.Impact Explored the challenge of low CR engagement in rural, low socio‐economic settings. Uncovered care provision, transitions and individual care biographies' relevance for CR engagement. Demonstrated the potential of CLCT to inform/transform CR services for underserved populations, impacting practices and outcomes. Reporting MethodEQUATOR—MMR‐RHS.Patient ContributionA consumer co‐researcher contributed to all study phases.

Funder

National Health and Medical Research Council

Flinders Foundation

Publisher

Wiley

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