Between invisible defects and visible impact: the life experiences of adolescents and young adults with congenital heart disease

Author:

Chiang Yueh-Tao1,Chen Chi-Wen2,Su Wen-Jen3,Wang Jou-Kou4,Lu Chun-Wei4,Li Yuh-Fen5,Moons Philip6

Affiliation:

1. Graduate Institute of Clinical Medical Sciences; Chang Gung University; Taoyuan Taiwan

2. School of Nursing; National Yang-Ming University; Taipei Taiwan

3. Department of Pediatric; Chang Gung Children's Hospital; Taoyuan Taiwan

4. Department of Pediatrics; College of Medicine; National Taiwan University; Taipei Taiwan

5. Department of Nursing; Chang Gung Children's Hospital; Taoyuan Taiwan

6. Department of Public Health and Primary Care; KU Leuven-University of Leuven; Belgium

Funder

National Science Council

Publisher

Wiley

Subject

General Nursing

Reference33 articles.

1. Young adults experiences of living with congenital heart disease;Berghammer;International Journal of Cardiology,2006

2. Obstacles in the newly established adult congenital heart disease program: finding from a study conducted in western pennsylvania;Brown;Journal of the American College of Cardiology,2012

3. Illness understanding in adults with congenital heart disease;Chessa;Italian Federation of Cardiology,2005

4. What does it mean to live with a congenital heart disease? A qualitative study on the lived experiences of adult patients;Claessens;European Journal of Cardiovascular Nursing,2005

5. Adolescents' understanding of their congenital heart disease on transfer to adult-focused care;Deyk;The American Journal of Cardiology,2010

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