Families dealing with the uncertainty of genetic disorders: the case of Neurofibromatosis Type 1
Author:
Affiliation:
1. Egenis; Department of Sociology, Philosophy and Anthropology; University of Exeter; UK
2. Clinical Genetics Royal Devon & Exeter Hospital; Exeter UK
Publisher
Wiley
Subject
Public Health, Environmental and Occupational Health,Health Policy,Health (social science)
Link
http://onlinelibrary.wiley.com/wol1/doi/10.1111/1467-9566.12401/fullpdf
Reference72 articles.
1. ‘The Elephant Man’ as ‘self’ and ‘other’: the psycho-social costs of a misdiagnosis;Ablon;Social Science and Medicine,1995
2. Gender response to neurofibromatosis 1;Ablon;Social Science and Medicine,1996
3. Parents’ responses to their child's diagnosis of Neurofibromatosis 1;Ablon;American Journal of Medical Genetics,2000
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