A prospective study of health-related quality of life of boys with severe haemophilia A in China: comparing on-demand to prophylaxis treatment

Author:

Wu R.12,Sun J.3,Xiao J.4,Liu Y.3,Xue F.5,Wang H.6,Tang L.12,Zhao Y.7,Li K.7,Yang R.5,Hu Y.6,Luke K.-H.8,Poon M.-C.9,Blanchette V. S.1011,Usuba K.12,Young N. L.12ORCID

Affiliation:

1. Hematology Oncology Center; Beijing Children's Hospital; Capital Medical University; Beijing China

2. Beijing Key Laboratory of Pediatric Hematology Oncology; National Key Discipline of Pediatrics; Ministry of Education; Beijing China

3. Department of Hematology; Nanfang Hospital; Southern Medical University; Guangzhou China

4. Department of Pediatrics; Peking Union Medical College Hospital; Chinese Academy of Medical Sciences; Peking Union Medical College; Beijing China

5. Thrombosis & Hemostasis center; Institute of Hematology; Blood Diseases Hospital Chinese Academy of Medical Sciences; Peking Union Medical College; Tianjin China

6. Department of Hematology; Wuhan Union Medical College Hospital; Huazhong University of Science and Technology; Wuhan China

7. Department of Hematology; Hemophilia clinic; Peking Union Medical College Hospital; Chinese Academy of Medical Sciences; Peking Union Medical College; Beijing China

8. Department of Pediatrics; Laboratory Medicine and Pathology; Division of Hematology and Oncology; Children Hospital of Eastern Ontario; University of Ottawa; Ottawa ON Canada

9. Departments of Medicine, Pediatrics and Oncology; Foothills Hospital; Alberta Health Services; University of Calgary and Southern Alberta Rare Blood and Bleeding Disorders Comprehensive Care Program; Calgary AB Canada

10. Division of Hematology/Oncology; The Hospital for Sick Children; Toronto ON Canada

11. Department of Pediatrics; University of Toronto; Toronto ON Canada

12. School of Rural and Northern Health and the Research Centre for Evaluating Children's Health Outcomes (ECHO); Laurentian University; Sudbury ON Canada

Funder

Bayer

Publisher

Wiley

Subject

Genetics(clinical),Hematology,General Medicine

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