Integrated psychological care services within seizure settings: Key components and implementation factors among example services in four ILAE regions: A report by the ILAE Psychiatry Commission

Author:

Gandy Milena1ORCID,Michaelis Rosa2ORCID,Acraman Jayne3,Donald Kirsten A.45,Fitzpatrick Michael6,LaFrance W. Curt7ORCID,Margolis Seth A.89,Modi Avani C.10ORCID,Reuber Markus11,Tang Venus1213,Thayer Zoe6,Verity Kirsten14,Wagner Janelle L.15,Wilmshurst Jo16ORCID,Whittaker Sarah14,Munger Clary Heidi M.17ORCID

Affiliation:

1. eCentreClinic, Faculty of Medicine, Health, and Human Sciences, School of Psychological Sciences Macquarie University Sydney New South Wales Australia

2. Ruhr‐Epileptology, Department of Neurology, University Hospital Knappschaftskrankenhaus Bochum Ruhr University Bochum Bochum Germany

3. Department of Neurology Royal Hallamshire Hospital Sheffield UK

4. Division of Developmental Paediatrics, Department of Paediatrics and Child Health Red Cross War Memorial Children's Hospital Cape Town South Africa

5. Neurosciences Institute University of Cape Town Cape Town South Africa

6. Department of Neurosciences Royal Prince Alfred Hospital Sydney New South Wales Australia

7. Division of Neuropsychiatry and Behavioral Neurology, Departments of Psychiatry and Neurology, Rhode Island Hospital Brown University Providence Rhode Island USA

8. Division of Neuropsychology, Department of Psychiatry, Rhode Island Hospital Brown University Providence Rhode Island USA

9. Department of Psychiatry and Human Behavior Alpert Medical School of Brown University Providence Rhode Island USA

10. Division of Behavioral Medicine and Clinical Psychology, College of Medicine, Cincinnati Children's Hospital Medical Center University of Cincinnati Cincinnati Ohio USA

11. Academic Neurology Unit, Royal Hallamshire Hospital University of Sheffield Sheffield UK

12. Department of Clinical Psychology, Prince of Wales Hospital Hospital Authority Sha Tin Hong Kong

13. Division of Neurosurgery, Department of Surgery, Faculty of Medicine Chinese University of Hong Kong Ma Liu Shui Hong Kong

14. Paediatric Psychology and Liaison Service, Royal Hospital for Children and Young People NHS Lothian Child and Adolescent Mental Health Service South Edinburgh UK

15. College of Nursing Medical University of South Carolina Charleston South Carolina USA

16. Department of Paediatric Neurology, Neuroscience Institute, Red Cross War Memorial Children's Hospital University of Cape Town Cape Town South Africa

17. Department of Neurology Wake Forest University School of Medicine Winston‐Salem North Carolina USA

Abstract

AbstractMental health comorbidities are prevalent and problematic in patients with seizures but often suboptimally managed. To address common gaps in care, the Integrated Mental Health Care Pathways Task Force of the International League Against Epilepsy (ILAE) Psychiatry Commission was tasked with providing education and guidance on the integration of mental health management (e.g., screening, referral, treatment) into routine seizure care. This report aims to describe a variety of established services in this area, with a specific focus on psychological care models. Services were identified by members of the ILAE Psychiatry Commission and authors of psychological intervention trials in epilepsy. A total of eight services met inclusion criteria and agreed to be showcased. They include three pediatric and five adult services located across four distinct ILAE regions (Europe, North America, Africa, Asia Oceania). The report describes the core operations, known outcomes, and implementation factors (i.e., barriers and facilitators) of these services. The report concludes with a set of practical tips for building successful psychological care services within seizure settings, including the importance of having local champions, clearly defining the scope of the service, and establishing sustainable funding models. The breadth of exemplars demonstrates how models tailored to the local environment and resources can be implemented. This report is an initial step to disseminate information regarding integrated mental health care within seizure care settings. Future work is needed to systematically examine both psychological and pharmacological care models and to further establish the evidence base in this area, especially around clinical impact, and cost‐effectiveness.

Publisher

Wiley

Subject

Neurology (clinical),Neurology

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