The experiences of people with disability and their families/carers navigating the NDIS planning process in regional, rural and remote regions of Australia: Scoping review
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Published:2023-06-27
Issue:4
Volume:31
Page:631-647
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ISSN:1038-5282
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Container-title:Australian Journal of Rural Health
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language:en
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Short-container-title:Australian J Rural Health
Author:
Veli‐Gold Sarah1,
Gilroy John1ORCID,
Wright Wayne1,
Bulkeley Kim1,
Jensen Heather1,
Dew Angela2,
Lincoln Michelle3
Affiliation:
1. Faculty of Medicine and Health The University of Sydney Sydney NSW Australia
2. Faculty of Health Deakin University Geelong Victoria Australia
3. Faculty of Medicine Canberra University Canberra Australian Capital Territory Australia
Abstract
AbstractBackgroundAustralia's National Disability Insurance Scheme (NDIS) was launched in 2013 to provide financial support packages for people with disability to purchase supports and services to enhance independence. People with disability are required to develop a plan with the National Disability Insurance Agency (NDIA), the government department responsible for managing the NDIS. This scoping review aims to ascertain the level of research into people's experience of the NDIS planning process in these geographic areas.MethodologyResearch publication databases were searched using a specific search string to identify research about people with disability and their families/carer's experiences of the NDIS planning process in regional, rural and remote regions of Australia. The Mixed Methods Appraisal Tool (MMAT) was adopted to appraise the quality of the research publications. Research publications focused on Aboriginal and Torres Strait Islander people were additionally appraised using the Aboriginal and Torres Strait Islander Quality Appraisal Tool developed by the Centre for Excellence in Aboriginal Chronic Disease Knowledge Translation and Exchange. A thematic synthesis of the publications' contents was undertaken to ascertain people with disabilities and carers experience of the NDIS planning process.ResultsTen (N = 10) research papers were found that met the inclusion criteria. Two papers were policy reviews and reported on the improvements of the NDIS planning process since its conception. The analysis found the research archive focused on five themes: (1) healthcare workforce and NDIA staff; (2) NDIS package holders and carers lack of awareness of the NDIS; (3) cultural/socio‐economic barriers; (4) travel funding; and (5) emotional burden of the NDIS planning process.ConclusionThere are limited papers available that explore people's experiences of the NDIS planning process in regional, rural and remote regions of Australia. This systematic review illuminates the difficulties, barriers and concerns of people with disability and their carers about the planning process.
Funder
Australian Research Council
Subject
Family Practice,Public Health, Environmental and Occupational Health