Humanistic burden of problem joints for children and adults with haemophilia

Author:

Burke Tom1,Rodriguez‐Santana Idaira1ORCID,Chowdary Pratima2ORCID,Curtis Randall3ORCID,Khair Kate14ORCID,Laffan Michael5ORCID,Mclaughlin Paul2ORCID,Noone Declan16,O'Mahony Brian7ORCID,Pasi John8ORCID,Skinner Mark910ORCID,O'Hara Jamie111

Affiliation:

1. HCD Economics Daresbury UK

2. Katherine Dormandy Haemophilia Centre and Thrombosis Unit Royal Free London NHS Foundation Trust London UK

3. Hematology Utilization Group Study (HUGS) Walnut Creek USA

4. Haemnet London UK

5. Centre for Haematology Imperial College London London UK

6. European Haemophilia Consortium Brussels Belgium

7. Irish Haemophilia Society Dublin Ireland

8. Royal London Haemophilia Centre Barts and the London School of Medicine and Dentistry London UK

9. McMaster University Hamilton Canada

10. Institute for Policy Advancement Ltd Washington DC

11. University of Chester Chester UK

Publisher

Wiley

Subject

Genetics (clinical),Hematology,General Medicine

Reference14 articles.

1. Musculoskeletal Complications of Hemophilia

2. WFH Guidelines for the Management of Hemophilia, 3rd edition

3. “Problem Joint” a more patient relevant definition for joint morbidity in haemophilia;O'Hara J;Haemophilia,2019

4. The target joint

5. Definitions in hemophilia: communication from the SSC of the ISTH

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