“The challenge of managing insecurities”: Parents’ experiences with the care for their child with congenital diaphragmatic hernia
Author:
Affiliation:
1. Faculty of Science, Athena InstituteVU UniversityAmsterdam The Netherlands
2. Lung Foundation NetherlandsAmersfoort The Netherlands
Funder
Lung Foundation Netherlands
Foundation NutsOhra
Publisher
Wiley
Subject
Pediatrics
Link
https://onlinelibrary.wiley.com/doi/pdf/10.1111/jspn.12247
Reference36 articles.
1. Fathers’ Experiences in the Neonatal Intensive Care Unit: A Search for Control
2. Congenital diaphragmatic hernia: Treatment and outcomes
3. Hospitalized children with chronic illness: Parental caregiving needs and valuing parental expertise
4. Using thematic analysis in psychology
5. Maternal factors related to parenting young children with congenital heart disease
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1. Clinical Care Trajectory Assessment of Children with Congenital Diaphragmatic Hernia and Neurodevelopmental Impairment;Journal of Pediatric Surgery;2024-09
2. Patient‐reported outcomes for congenital diaphragmatic hernia: A qualitative study;Prenatal Diagnosis;2023-01-21
3. Development of mortality prediction models for infants with isolated, left‐sided congenital diaphragmatic hernia before and after birth;Pediatric Pulmonology;2022-10-11
4. Distress and post-traumatic stress in parents of patients with congenital gastrointestinal malformations: a cross-sectional cohort study;Orphanet Journal of Rare Diseases;2022-09-11
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