Coproducing a library of videos to support families caring for children with gastrostomies: A mixed‐methods evaluation with family carers and clinicians

Author:

Page Bethan1ORCID,Lee Alex C. H.2,Harrop Emily J.3,Beale Tania3,Sharrard Alison2,Yeung Nick1,Vincent Charles A.1

Affiliation:

1. Department of Experimental Psychology University of Oxford Oxford UK

2. Department of Paediatrics Oxford University Hospitals NHS Foundation Trust Oxford UK

3. Helen and Douglas House Oxford UK

Funder

Economic and Social Research Council

Health Foundation

Publisher

Wiley

Subject

Public Health, Environmental and Occupational Health

Reference19 articles.

1. Bridging Troubled Waters: Family Caregivers, Transitions, And Long-Term Care

2. Medically Complex Home Care and Caregiver Strain

3. The use of advanced medical technologies at home: a systematic review of the literature

4. FraserL Gibson‐SmithD JarvisS NormanP&ParslowR“Make Every Child Count” Estimating Current and Future Prevalence of Children and Young People with Life‐Limiting Conditions in the United Kingdom. 2020.https://www.togetherforshortlives.org.uk/resource/make-every-child-count/

5. The challenges of caring for children who require complex medical care at home: ‘The go between for everyone is the parent and as the parent that’s an awful lot of responsibility’

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