Informing the development of the Canadian Neurodiversity Platform: What is important to parents of children with neurodevelopmental disabilities?

Author:

Gonzalez Miriam12ORCID,Saxena Shikha3ORCID,Chowdhury Farhin4,Dyck Holzinger Sasha2,Martens Rachel56,Oskoui Maryam127,Shikako‐Thomas Keiko289ORCID

Affiliation:

1. Department of Neurology and Neurosurgery McGill University Montréal Quebec Canada

2. Research Institute of the McGill University Health Centre McGill University Montréal Quebec Canada

3. School of Human Kinetics University of Ottawa Ottawa Ontario Canada

4. Department of Educational and Counselling Psychology, Faculty of Education McGill University Montréal Canada

5. CHILD BRIGHT Network Montreal Quebec Canada

6. Kids Brain Health Network Surrey British Columbia Canada

7. Department of Pediatrics McGill University Montréal Quebec Canada

8. School of Physical and Occupational Therapy McGill University Montréal Quebec Canada

9. Canada Research Chair in Childhood Disabilities: Participation and Knowledge Translation McGill University Montréal Quebec Canada

Publisher

Wiley

Subject

Public Health, Environmental and Occupational Health,Developmental and Educational Psychology,Pediatrics, Perinatology and Child Health

Reference34 articles.

1. A Systematic Review of U.S. Studies on the Prevalence of Intellectual or Developmental Disabilities Since 2000

2. The Triple Aim: Care, Health, And Cost

3. The Global Prader–Willi Syndrome Registry: Development, Launch, and Early Demographics

4. Canadian Institutes of Health Research. (2014).Strategy for patient‐oriented research (SPOR): Putting patients first. Patient engagement framework. Retrieved fromhttps://cihr-irsc.gc.ca/e/documents/spor_framework-en.pdf

5. Development of the Children With Disabilities Algorithm

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