Blowing the whistle: moral distress and advocacy for preterm infants and their families

Author:

Janvier Annie12,Prentice Trisha34,Lantos John5

Affiliation:

1. Departement of Pediatrics; University of Montreal; Montreal QC Canada

2. Division of Neonatology; Clinical Ethics Unit; Palliative Care Unit; Unité de Recherche en Éthique Clinique et Partenariat Famille; CHU Ste-Justine; Montreal QC Canada

3. Newborn Research; Royal Women's Hospital; Melbourne Vic. Australia

4. Neonatal Medicine; Royal Children's Hospital; Melbourne Vic. Australia

5. Department of Pediatrics and Clinical Ethics; Children's Mercy Hospital; Kansas City MO USA

Publisher

Wiley

Subject

General Medicine,Pediatrics, Perinatology and Child Health

Reference10 articles.

1. Intensive care for extreme prematurity-moving beyond gestational age;Tyson;N Engl J Med,2008

2. Self-perceived health-related quality of life of former extremely low birth weight infants at young adulthood;Saigal;Pediatrics,2006

3. Periviability and the ‘god committee’;Marmion;Acta Paediatr,2017

4. CPS position statement for prenatal counselling before a premature birth: simple rules for complicated decisions;Janvier;Paediatr Child Health,2014

5. Our child is not just a Gestational age. A first-hand account of what parents want and need to know before premature birth;Staub;Acta Paediatr,2014

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