Identifying the asthma research priorities of people with asthma, their carers and other stakeholders-Reference-Cited by-同舟云学术

Identifying the asthma research priorities of people with asthma, their carers and other stakeholders

Published:2023-03-15 Issue:7 Volume:28 Page:636-648
ISSN:1323-7799
Container-title:Respirology
language:en
Short-container-title:Respirology

Author:

Majellano Eleanor C.¹²³^ORCID,Bell Rose L.⁴,Flynn Anthony W.⁴,Mckenzie Anne⁵,Sivamalai Sundram⁶,Goldman Michele⁷,Vaughan Lauren⁸,Gibson Peter G.¹³⁹¹⁰^ORCID

Affiliation:

1. National Health and Medical Research Council Centre for Research Excellence in Severe Asthma and Centre for Research Excellence in Treatable Traits The University of Newcastle Newcastle New South Wales Australia

2. School of Nursing and Midwifery, College of Health, Medicine and Wellbeing The University of Newcastle Newcastle New South Wales Australia

3. Hunter Medical Research Institute Asthma and Breathing Research Program Newcastle New South Wales Australia

4. Research, Information and Evaluation, Asthma Australia Melbourne Victoria Australia

5. Telethon Kids Institute, Perth Children's Hospital Nedlands Western Australia Australia

6. Ethnic Communities' Council of Victoria Ballarat Victoria Australia

7. Asthma Australia Chatswood New South Wales Australia

8. Australia Marketing and Communication Asthma Australia Fortitude Valley Queensland Australia

9. School of Medicine and Public Health, College of Health, Medicine and Wellbeing The University of Newcastle Newcastle New South Wales Australia

10. Department of Respiratory and Sleep Medicine John Hunter Hospital Newcastle New South Wales Australia

Abstract

AbstractBackground and ObjectivePeople living with asthma, their carers, clinicians and policymakers are the end‐users of research and need research that address their individual healthcare needs. We aimed to understand the research priorities of end‐users of asthma research.MethodsA national cross‐sectional mixed‐methods study was conducted. The study included an online survey that engaged patients, carers, healthcare professionals and policymakers to provide statements to free‐text questions about what they would like to see answered by research to improve living with asthma on a day‐to‐day basis. Responses where thematically analysed followed by three online priority setting consensus workshops.ResultsThere were 593 respondents who provided 1446 text comments. Participants prioritized 10 asthma research themes which were: (1) asthma in children, (2) COVID 19 and asthma, (3) asthma care and self‐management, (4) diagnosis and medication, (5) managing asthma attacks, (6) causes, prevention and features of asthma, (7) mental health, (8) asthma and ageing, (9) severe asthma, (10) asthma and other health conditions. Each theme comprises specific research questions.ConclusionThis project successfully established 10 priority research themes for asthma, reflecting the collective voice of the end‐users of this research. These novel data can be used to address the documented mismatch in research prioritization between the research community and the end‐users of research.

Funder

Asthma Australia

Publisher

Wiley

Subject

Pulmonary and Respiratory Medicine

Link

https://onlinelibrary.wiley.com/doi/pdf/10.1111/resp.14492

Reference37 articles.

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4. Patients’, clinicians’ and the research communities’ priorities for treatment research: there is an important mismatch

5. How to increase value and reduce waste when research priorities are set

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