Young adults with vision impairment in India: Loneliness and social networks

Author:

Gothwal Vijaya K.123ORCID,Kanchustambam Jahnavi1,Kodavati Krishnapriya1,Subramanian Ahalya4ORCID

Affiliation:

1. Meera and L B Deshpande Centre for Sight Enhancement, Institute for Vision Rehabilitation L V Prasad Eye Institute Kallam Anji Reddy Campus, Banjara Hills, L V Prasad Marg Hyderabad Telangana India

2. Brien Holden Eye Research Centre—Patient Reported Outcomes Unit L V Prasad Eye Institute Kallam Anji Reddy Campus, Banjara Hills, L V Prasad Marg Hyderabad Telangana India

3. School of Optometry and Vision Science University of New South Wales Sydney New South Wales Australia

4. Centre for Applied Vision Research, School of Health and Psychological Sciences, City University of London London UK

Abstract

AbstractPurposeTo examine the prevalence of loneliness and associated factors in young adults with vision impairment (VI), including quality of life (QoL) in India.MethodsTwo hundred and three VI young adults (18–35 years) and 219 age‐matched non‐VI (controls) adults completed the loneliness scale, WHOQOL‐BREF, Social Network Index (SNI) (network diversity, people in network size and number of embedded network subscales) and questions regarding sociodemographic characteristics and independent mobility. Rasch analysis was used to validate the questionnaires and interval‐level scores were generated. Generalised linear models were used to estimate independent associations of sociodemographic factors, VI characteristics, social networks and QoL with loneliness.ResultsThe prevalence of moderate and severe loneliness in the VI group was 10% (95% CI: 6.5, 15.4) and 4.4% (95% CI: 2.0, 8.2), respectively, and higher than that of controls. The VI group had a worse loneliness score than controls (−1.66 ± 2.25 vs. −2.13 ± 1.85 logits; p = 0.03). Those with ≤12 years and >12 years of education had loneliness scores of −1.58 ± 2.45 and −1.82 ± 1.99 logits, respectively (p = 0.01). Compared with controls, the VI group reported fewer extended family members, neighbours and friends leading to significantly smaller networks and network diversity (all p < 0.001). Loneliness scores demonstrated a significant correlation with only two SNI subscales for both groups: people in network size (r = −0.28 for VI; r = −0.30 for non‐VI; p < 0.001 for both) and number of embedded networks (r = −0.22 for VI; r = −0.21 for non‐VI; p = 0.002 for both). Both education (β = 0.45; p = 0.04) and QoL (β = −0.27, p = 0.02) were predictors of loneliness.ConclusionsLoneliness was commonly experienced by young VI adults and was higher among those with lower levels of education. Loneliness decreased with the presence of a larger number of people in network, suggesting that interventions to increase social activity and participation may be valuable in young VI adults.

Funder

Global Challenges Research Fund

Hyderabad Eye Research Foundation

Publisher

Wiley

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