Registries and databases—A European perspective
Author:
Affiliation:
1. Department of Clinical Sciences ‐ Paediatrics Lund University Lund and Malmö Sweden
Publisher
Wiley
Subject
Genetics(clinical),Hematology,General Medicine
Link
https://onlinelibrary.wiley.com/doi/pdf/10.1111/hae.13920
Reference3 articles.
1. FranceCoag: a 22-year prospective follow-up of the national French cohort of patients with inherited bleeding disorders
2. Prospective observational cohort studies for studying rare diseases: the European PedNet Haemophilia Registry
3. Diagnostic Symptoms of Severe and Moderate Haemophilia A and B A Survey of 140 Cases
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