Reconciling validity and challenges of patient comfort and understanding: Guidelines to patient‐oriented questionnaires

Author:

Hudon Catherine12ORCID,Danish Alya1,Lambert Mireille3,Howse Dana4,Cassidy Monique5,Dumont‐Samson Olivier1,Porter Judy6,Rubenstein Donna6,Sabourin Véronique6,Doucet Shelley7,Ramsden Vivian R.8,Bisson Mathieu1,Schwarz Charlotte7,Chouinard Maud‐Christine9

Affiliation:

1. Département de médecine de famille et de médecine d'urgence Université de Sherbrooke Sherbrooke Canada

2. Centre de recherche du centre hospitalier universitaire de Sherbrooke Sherbrooke Canada

3. Centre intégré universitaire de santé et de services sociaux du Saguenay‐Lac‐Saint‐Jean Chicoutimi Canada

4. Primary Healthcare Research Unit Memorial University St. John's Canada

5. Department of Interdisciplinary Studies University of New Brunswick Saint John Canada

6. Patient Partner Canada

7. Department of Nursing and Health Sciences University of New Brunswick Saint John Canada

8. Department of Academic Family Medicine University of Saskatchewan Saskatoon, Saskatchewan Canada

9. Faculté des sciences infirmières Université de Montréal Montreal Canada

Funder

Canadian Institutes of Health Research

Publisher

Wiley

Subject

Public Health, Environmental and Occupational Health

Reference46 articles.

1. Patient‐reported outcomes (PROs) and patient‐reported outcome measures (PROMs);Weldring T;Health Serv Insights,2013

2. Guidance for industry: patient‐reported outcome measures: use in medical product development to support labeling claims: draft guidance;U.S. Department of Health HS, FDA, Center for Drug Evaluation Research, U.S. Department of Health Human Services FDA, Center for Biologics Evaluation Research, U.S. Department of Health Human Services FDA, Center for Devices Radiological, Health;Health Qual Life Outcomes,2006

3. ISOQOL recommends minimum standards for patient‐reported outcome measures used in patient‐centered outcomes and comparative effectiveness research;Reeve BB;Qual Life Res,2013

4. Patient involvement in the development of patient‐reported outcome measures: a scoping review;Wiering B;Health Expect,2017

5. Quality and acceptability of patient‐reported outcome measures used in chronic fatigue syndrome/myalgic encephalomyelitis (CFS/ME): a systematic review;Haywood KL;Qual Life Res,2012

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