Research Participant-Centered Outcomes at NIH-Supported Clinical Research Centers

Author:

Kost Rhonda G.1,Lee Laura N.2,Yessis Jennifer L.3,Wesley Robert2,Alfano Sandra4,Alexander Steven R.5,Kassis Sylvia Baedorf6,Cola Philip7,Dozier Ann8,Ford Dan E.9,Harris Paul A.10,Kim Emmelyn11,Lee Simon Craddock12,O'Riordan Gerri5,Roth Mary-Tara6,Schuff Kathryn13,Wasser June14,Henderson David K.2,Coller Barry S.1

Affiliation:

1. Center for Clinical Translational Science; The Rockefeller University; New York New York USA

2. Office of the Deputy Director for Clinical Care, Clinical Center; The National Institutes of Health; Bethesda Maryland USA

3. The Propel Centre for Population Health; University of Waterloo; Waterloo Ontario Canada

4. Human Investigation Committee; Yale University; New Haven Connecticut USA

5. Spectrum: Stanford University Center for Clinical and Translational Education and Research; Stanford University; Palo Alto California USA

6. Boston University Clinical and Translational Science Institute; Boston Massachusetts USA

7. University Hospitals Case Medical Center and Case Western Reserve University School of Medicine; Cleveland Ohio USA

8. The University of Rochester; Rochester New York USA

9. The Johns Hopkins Institute for Clinical Translational Research; Baltimore Maryland USA

10. Vanderbilt Institute for Clinical and Translational Research; Vanderbilt University; Nashville Tennessee USA

11. Feinstein Institute for Medical Research; North Shore-LIJ Health System; Manhasset New York USA

12. Department of Clinical Sciences; University of Texas Southwestern Medical Center; Dallas Texas USA

13. Oregon Health & Sciences University; Portland Oregon USA

14. Tufts University School of Medicine; Boston Massachusetts USA

Funder

National Center for Advancing Translational Sciences

NIH Clinical Center

Publisher

Wiley

Subject

General Pharmacology, Toxicology and Pharmaceutics,General Biochemistry, Genetics and Molecular Biology,General Medicine,General Neuroscience

Reference37 articles.

1. The measurement of satisfaction with healthcare: implications for practice from a systematic review of the literature;Crow;Health Technol Assess.,2002

2. The relationship between patients’ perception of care and measures of hospital quality and safety;Isaac;Health Serv Res.,2010

3. Centers for Medicare and Medicare Services HCAHPS: Patients’ Perspectives of Care Survey 2011 http://www.cms.gov/HospitalQualityInits/30_HospitalHCAHPS.asp Accessed May 25, 2011

4. Attitudes towards clinical research amongst participants and nonparticipants;Madsen;J Intern Med.,2002

5. An investigation of patients’ motivations for their participation in genetics-related research;Hallowell;J Med Ethics.,2010

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