“From All, To All”: Implementing a collaborative online conference to reflect on the daily living of individuals with cerebral palsy

Author:

Vieira Beatriz S.1,Airoldi Marina J.12,Chalfun Deborah1,Bonfim Rafael G. A. S.1,Teplicky Rachel3,Rosenbaum Peter3ORCID,Mancini Marisa C.2ORCID,Brandão Marina B.24ORCID

Affiliation:

1. Instituto Nossa Casa Campinas Brazil

2. Graduate Program in Rehabilitation Sciences Universidade Federal de Minas Gerais Belo Horizonte Brazil

3. CanChild Centre for Childhood Disability McMaster University Hamilton Ontario Canada

4. Department of Occupational Therapy Universidade Federal de Minas Gerais Belo Horizonte Brazil

Abstract

AbstractBackgroundTranslating knowledge to improve paediatric rehabilitation has become a research area of interest. This study describes the development and evaluation of an online conference that brought together perspectives of individuals with cerebral palsy (CP), families, health care professionals, and researchers to discuss the daily living of individuals with CP.MethodsWe anchored the development and implementation of the online conference in the action cycle of the Knowledge to Action Framework. To develop the meeting, we included representatives from each stakeholder group in the programme committee. The conference programme was designed having the lifespan perspective of individuals with CP, from birth to adulthood, as its central core, with themes related to daily living (e.g., self‐care, mobility, and continuing education). Participants' satisfaction with the conference was assessed using an anonymized online survey sent to all participants.ResultsThe conference had 1656 attendees, of whom 675 answered the online satisfaction survey. Most participants rated the structure of the conference (i.e., quality of the technical support, audio and video, and online platform) and discussed topics (i.e., relevance, content, discussion, speakers, and available time) positively.ConclusionCollaborative conferences that include stakeholders throughout the planning and implementation are a viable, effective knowledge translation strategy that allows for sharing experiences and disseminating knowledge among families and individuals with CP, health care professionals, and researchers.

Funder

Coordenação de Aperfeiçoamento de Pessoal de Nível Superior

Publisher

Wiley

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