Development of a core outcome set for myelodysplastic syndromes – a Delphi study from the EUMDS Registry Group

Author:

Rochau Ursula1ORCID,Stojkov Igor1,Conrads‐Frank Annette1,Borba Helena H.2,Koinig Karin A.3ORCID,Arvandi Marjan1,Marrewijk Corine4,Garelius Hege5,Germing Ulrich6,Symeonidis Argiris7,Sanz Guillermo F.89,Fenaux Pierre10ORCID,Witte Theo11,Efficace Fabio12,Siebert Uwe11314ORCID,Stauder Reinhard3ORCID

Affiliation:

1. Department of Public Health, Health Services Research and Health Technology Assessment Institute of Public Health, Medical Decision Making and Health Technology Assessment UMIT – University for Health Sciences, Medical Informatics and Technology Hall i.T. Austria

2. Department of Pharmacy Pharmaceutical Sciences Postgraduate Research Program Federal University of Paraná Curitiba Brazil

3. Department of Internal Medicine V (Hematology and Oncology) Innsbruck Medical University Innsbruck Austria

4. Department of Hematology Radboud university medical center Nijmegen the Netherlands

5. Department of Medicine Section of Hematology and Coagulation Sahlgrenska University Hospital Göteborg Sweden

6. Department of Hematology, Oncology and Clinical Immunology Universitätsklinik Düsseldorf Düsseldorf Germany

7. Department of Internal Medicine Division of Hematology University of Patras Medical School Patras Greece

8. Department of Hematology Hospital Universitario y Politécnico La Fe Valencia Spain

9. Centro de Investigación Biomédica en Red de Cáncer CIBERONC Instituto de Salud Carlos III Madrid Spain

10. Service d'Hématologie Hôpital Saint‐Louis Assistance Publique des Hôpitaux de Paris (AP‐HP) and Université Paris 7 Paris France

11. Department of Tumor Immunology ‐ Nijmegen Center for Molecular Life Sciences Radboud university medical center Nijmegen the Netherlands

12. Health Outcomes Research Unit Gruppo Italiano Malattie Ematologiche dell’Adulto (GIMEMA) Rome Italy

13. Center for Health Decision Science Department of Health Policy and Management Harvard T.H. Chan School of Public Health Boston MA USA

14. Institute for Technology Assessment and Department of Radiology Massachusetts General Hospital Harvard Medical School Boston MA USA

Funder

Novartis

Amgen

Celgene

Publisher

Wiley

Subject

Hematology

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