Medicaid long‐term services and supports and caregiving needs of caregivers of individuals with intellectual and developmental disabilities-Reference-Cited by-同舟云学术

Medicaid long‐term services and supports and caregiving needs of caregivers of individuals with intellectual and developmental disabilities

Published:2024-08-05 Issue:5 Volume:37 Page:
ISSN:1360-2322
Container-title:Journal of Applied Research in Intellectual Disabilities
language:en
Short-container-title:Research Intellect Disabil

Author:

Mastrogiannis Ariana M.¹²,Steinway Caren¹²,Santos Telmo C.¹,Chen Jack¹,Berens John³,Davis Thomas⁴,Cornacchia Michelle⁴,Woodward Jason⁵,Riddle Ilka⁵,Spicer Brittany⁵,Wright Charmaine⁶,Lindquist Lee A.⁷,Jan Sophia¹²^ORCID

Affiliation:

1. Department of Pediatrics Northwell Health New Hyde Park New York USA

2. Department of Pediatrics Zucker School of Medicine at Hofstra/Northwell Hempstead New York USA

3. Department of Medicine Baylor College of Medicine Houston Texas USA

4. Division of General Internal Medicine Geisinger Medical Center Danville Pennsylvania USA

5. Division of Developmental and Behavioral Pediatrics Cinncinati Children's Hospital and Medical Center Cincinnati Ohio USA

6. Division of Internal Medicine Division of Pediatrics Christiana Care Wilmington Delaware USA

7. Division of Geriatrics Northwestern University Feinberg School of Medicine Chicago Illinois USA

Abstract

AbstractBackgroundLong‐term care services are funded primarily by Medicaid long‐term services and support in the United States, where eligibility is based on care needs of the individual with intellectual and developmental disability alone. Impact of Medicaid waiver services on self‐reported caregiver needs is not well understood.MethodCaregivers (n = 405) of individuals with intellectual and developmental disabilities across four states (NY, OH, TX, and PA) completed an online survey.ResultsCaregivers reported a moderate degree of burden and susceptibility of stress‐induced health breakdown. Despite controlling for the activities of daily living of the care recipient, caregivers of individuals with Medicaid Waiver services reported greater difficulty managing medications (p = .013) and finding paid help (p < .001) than caregivers of individuals without services.

Funder

Patrick and Catherine Weldon Donaghue Medical Research Foundation

Publisher

Wiley

Link

https://onlinelibrary.wiley.com/doi/pdf/10.1111/jar.13289

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