Development and implementation of common data elements for venous thromboembolism research: on behalf of SSC Subcommittee on official Communication from the SSC of the ISTH

Author:

Le Gal Grégoire1ORCID,Carrier Marc1ORCID,Castellucci Lana A.1,Cuker Adam2,Hansen John‐Bjarne3,Klok Frederikus A.4ORCID,Langlois Nicole J.1ORCID,Levy Jerrold H.5ORCID,Middeldorp Saskia6ORCID,Righini Marc7ORCID,Walters Sam8,Klok Erik,Bauman Kreuziger Lisa,Schulman Sam,Skeith Leslie,Zakai Neil,Riva Nicoletta,Douxfils Jonathan,Kahn Susan,Ten Cate‐Hoek Arina,Konstantinides Stavros,Ghanima Waleed,Lang Irene,Galanaud Jean‐Philippe,Moumneh Thomas,Gandara Esteban,Prandoni Paolo,Witmer Char,Lazo‐Langner Alejandro,Robert‐Ebadi Helia,Ní Áinle Fionnuala,Wu Cynthia,Wang Tzu‐Fei,Zwicker Jeffrey,Lauw Mandy,Ay Cihan,Maus Gabriela Cesarman,Angchaisuksiri Pantep,Steiner Marie,Bartz Raquel,Connors Jean,Samama Marc,Spyropoulos Alex,Faraoni David,Iba Toshiaki,Kearon Clive,Canniegeter Suzanne,Morange Pierre,Brækkan Sigrid,Morelli Vania,Orsi Fernanda,

Affiliation:

1. Department of Medicine Ottawa Hospital Research Institute University of Ottawa Ottawa ON Canada

2. Department of Medicine and Department of Pathology and Laboratory Medicine Perelman School of Medicine University of Pennsylvania Philadelphia PA USA

3. K.G.Jebsen ‐ Thrombosis Research and Expertise Center (TREC) Department of Clinical Medicine UiT ‐ The Arctic University of Norway Tromsø Norway

4. Department of Medicine ‐ Thrombosis and Hemostasis Leiden University Medical Center Leiden the Netherlands

5. Departments of Anesthesiology Critical Care, and Surgery Duke University School of Medicine Durham NC USA

6. Department of Vascular Medicine Amsterdam Cardiovascular SciencesAmsterdam UMC Amsterdam the Netherlands

7. Division of Angiology and Hemostasis Geneva University Hospitals and Faculty of Medicine Geneva Switzerland

8. Breakthrough Healthcare Baltimore MD USA

Funder

International Society on Thrombosis and Haemostasis

Publisher

Wiley

Subject

Hematology

Reference6 articles.

1. http://cdisc.org/standards/foundational/cdash

2. National Institute of Neurological Disorders and Stroke Common Data Element Project – approach and methods

3. https://breakthrough.healthcare/clinical‐datasets‐and‐measures

4. https://www.nlm.nih.gov/cde/index.html

5. https://www.isth.org/page/redcap

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