Validation of PROMIS Profile‐29 in adults with hemophilia in the Netherlands

Author:

Balen Erna C.1ORCID,Haverman Lotte2ORCID,Hassan Shermarke1,Taal Elisabeth M.1,Smit Cees1,Driessens Mariëtte H.3ORCID,Beckers Erik A. M.4,Coppens Michiel5ORCID,Eikenboom Jeroen6ORCID,Hooimeijer Hélène L.7,Leebeek Frank W. G.8ORCID,Vulpen Lize F. D.9ORCID,Schols Saskia E. M.1011ORCID,Terwee Caroline B.12ORCID,Rosendaal Frits R.1ORCID,Bom Johanna G.113ORCID,Gouw Samantha C.114ORCID

Affiliation:

1. Department of Clinical Epidemiology Leiden University Medical Center Leiden The Netherlands

2. Child and Adolescent Psychiatry & Psychosocial Care Amsterdam Reproduction and Development Amsterdam Public Health Emma Children’s Hospital Amsterdam UMC University of Amsterdam Amsterdam The Netherlands

3. Netherlands Hemophilia Society Nijkerk The Netherlands

4. Department of Hematology Maastricht University Medical Centre Maastricht The Netherlands

5. Department of Vascular Medicine Amsterdam Cardiovascular Sciences Amsterdam University Medical Centers University of Amsterdam Amsterdam The Netherlands

6. Department of Internal Medicine Division of Thrombosis and Hemostasis Leiden University Medical Center Leiden The Netherlands

7. Department of Paediatrics University Medical Center Groningen Groningen The Netherlands

8. Department of Hematology Erasmus MC Rotterdam The Netherlands

9. Department of Benign Hematology Van Creveldkliniek University Medical Center Utrecht Utrecht University Utrecht The Netherlands

10. Department of Hematology Radboud University Medical Center Nijmegen the Netherlands

11. Hemophilia Treatment Center Nijmegen‐Eindhoven‐Maastricht Nijmegen The Netherlands

12. Department of Epidemiology and Data Science Amsterdam Public Health Research Institute Amsterdam UMC Vrije Universiteit Amsterdam The Netherlands

13. Center for Clinical Transfusion Research Sanquin Research/LUMC Leiden The Netherlands

14. Department of Pediatric Hematology Emma Children’s Hospital Amsterdam UMC University of Amsterdam Amsterdam The Netherlands

Publisher

Wiley

Subject

Hematology

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