Insight into the experiences of caregivers of older adults in long‐term care homes: A photovoice study

Abstract

AbstractAimsTo explore the lived experiences of caregivers of people living in long‐term care (LTC) homes during the initial phases of the COVID‐19 pandemic and potential supports and resources needed to improve caregivers' quality of life.BackgroundCarers (or care partners) of adults in LTC contribute substantially to the health and well‐being of their loved ones by providing physical care, emotional support and companionship. Despite their critical role, little is known about how caregivers have been impacted by the pandemic.DesignAn interpretive descriptive approach that incorporated the photovoice method was used.MethodsUsing a purposive sampling strategy, six family carers in Ontario, Canada were recruited between September and December 2021. Over a 4‐week period, caregivers took pictures depicting their experience of the pandemic that were shared in a virtual focus group. Visual and text data were analysed using thematic analysis with an inductive approach.FindingsCaregivers expressed feelings of frustration, confusion and joy. Emerging themes included: (i) feeling like a ‘criminal’ amidst visitor restrictions and rules; (ii) experiencing uncertainty and disappointment in the quality of care of long‐term care homes; (iii) going through burnout; and (iv) focusing on small joys and cherished memories.ConclusionsThe combination of visual and textual methods provided unique insight into the mental distress, isolation and intense emotional burdens experienced by caregivers during the pandemic.ImpactOur findings underscore the need for LTC organizations to work in unison with caregivers to optimize the care of residents and support the mental health of caregivers.Reporting MethodThis work adhered to the consolidated criteria for reporting qualitative research (COREQ) checklist.Public ContributionsThe caregivers included in the study were involved in the co‐creative process as active contributors informing the design and validation of the codes and themes.