“When the surgery was over, I felt like the worst part had passed”: experiences of parents of children with craniosynostosis
Author:
Affiliation:
1. Department of Surgical Sciences Uppsala University Uppsala Sweden
2. Department of Plastic and Maxillofacial Surgery Uppsala University Hospital Uppsala Sweden
3. Department of Neuroscience Psychiatry Uppsala University Uppsala Sweden
Publisher
Wiley
Subject
Pediatrics
Link
https://onlinelibrary.wiley.com/doi/pdf/10.1111/jspn.12370
Reference30 articles.
1. Coping Strategies and Social Support in the Family Impact of Cleft Lip and Palate and Parents’ Adjustment and Psychological Distress
2. Craniosynostosis: Caring for Infants and Their Families
3. Preoperative Anxiety in Greek Children and Their Parents When Presenting for Routine Surgery
4. Identifying the Misshapen Head: Craniosynostosis and Related Disorders
5. The qualitative content analysis process
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1. Surgery for Craniosynostosis: Developing a Psychosocial Booklet for Families;Journal of Craniofacial Surgery;2024-07-15
2. Parental satisfaction with hospital care for children with non-syndromic craniosynostosis: A mixed-method study;Journal of Pediatric Nursing;2024-07
3. Pediatric Medical Traumatic Stress in Individuals With Craniofacial Conditions;Perspectives of the ASHA Special Interest Groups;2024-06-03
4. Sports participation after craniosynostosis repair: the critical role of post-operative guidance in parental decision-making;Child's Nervous System;2024-04-05
5. Family Experiences with Diagnosis of Craniosynostosis: Thematic Analysis of Online Discussion Boards;The Cleft Palate Craniofacial Journal;2023-07-24
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