Analysis of therapy monitoring in the International Congenital Adrenal Hyperplasia Registry-Reference-Cited by-同舟云学术

Analysis of therapy monitoring in the International Congenital Adrenal Hyperplasia Registry

Published:2022-07-11 Issue:5 Volume:97 Page:551-561
ISSN:0300-0664
Container-title:Clinical Endocrinology
language:en
Short-container-title:Clinical Endocrinology

Author:

Lawrence Neil¹²^ORCID,Bacila Irina¹,Dawson Jeremy³⁴,Bryce Jillian⁵⁵,Ali Salma R.⁵⁵⁶,van den Akker Erica L. T.⁷,Bachega Tânia A. S. S.⁸,Baronio Federico⁹,Birkebæk Niels H.¹⁰,Bonfig Walter¹¹¹²^ORCID,van der Grinten Hedi C.¹³¹⁴,Costa Eduardo C.¹⁵,de Vries Liat¹⁶,Elsedfy Heba¹⁷,Güven Ayla¹⁸,Hannema Sabine¹⁹²⁰^ORCID,Iotova Violeta²¹,van der Kamp Hetty J.²²,Clemente María²³,Lichiardopol Corina R.²⁴,Milenkovic Tatjana²⁵,Neumann Uta²⁶^ORCID,Nordenström Ana²⁷²⁸^ORCID,Poyrazoğlu Şukran²⁹,Probst‐Scheidegger Ursina³⁰,De Sanctis Luisa³¹³²,Tadokoro‐Cuccaro Rieko³³,Thankamony Ajay³³,Vieites Ana³⁴,Yavaş Zehra³⁵,Faisal Ahmed Syed⁵⁵⁶^ORCID,Krone Nils¹²³⁶^ORCID

Affiliation:

1. Department of Oncology and Metabolism University of Sheffield Sheffield UK

2. Sheffield Children's Hospital NHS Foundation Trust Sheffield UK

3. Institute of Work Psychology, Management School University of Sheffield Sheffield UK

4. School of Health and Related Research, University of Sheffield Sheffield UK

5. Office for Rare Conditions Royal Hospital for Children & Queen Elizabeth University Hospital Glasgow UK

6. Developmental Endocrinology Research Group University of Glasgow Glasgow UK

7. Department of Pediatric Endocrinology, Sophia Children's Hospital Erasmus Medical Centre Rotterdam the Netherlands

8. Hormones and Molecular Genetics Laboratory LIM 42, Department of Internal Medicine University of Sao Paulo Sao Paulo Brazil

9. Department of Medical and Surgical Sciences, Pediatric Unit, Endo‐ERN Center for Rare Endocrine Diseases S. Orsola‐Malpighi University Hospital Bologna Italy

10. Department of Pediatrics Aarhus University Hospital Aarhus Denmark

11. Department of Pediatrics Technical University Munich Munich Germany

12. Department of Pediatrics Klinikum Wels‐Grieskirchen Wels Austria

13. Department of Pediatric Endocrinology Radboud University Medical Centre Nijmegen the Netherlands

14. Amalia Children's Hospital Radboud University Medical Centre Nijmegen the Netherlands

15. Pediatric Surgery Service Hospital de Clínicas de Porto Alegre Porto Alegre Brazil

16. Institute for Diabetes and Endocrinology Schneider's Children Medical Center of Israel Petah‐Tikvah Israel

17. Pediatrics Department Ain Shams University Cairo Egypt

18. Baskent University Istanbul Hospital Pediatric Endocrinology Istanbul Turkey

19. Department of Paediatric Endocrinology, Erasmus MC, Sophia Children's Hospital University Medical Center Rotterdam Rotterdam the Netherlands

20. Department of Paediatrics Leiden University Medical Centre Leiden the Netherlands

21. Department of Paediatrics Medical University of Varna Varna Bulgaria

22. Pediatric Endocrinology Wilhelmina Children's Hospital University Medical Centre Utrecht Utrecht the Netherlands

23. Paediatric Endocrinology, Hospital Universitario Vall d'Hebron CIBER de Enfermedades Raras (CIBERER) ISCIII Barcelona Spain

24. Department of Endocrinology University of Medicine and Pharmacy Craiova Craiova Romania

25. Department of Endocrinology Institute for Mother and Child Healthcare of Serbia “Dr Vukan Čupić” Belgrade Serbia

26. Institute for Experimental Pediatric Endocrinology and Center for Chronically Sick Children, Charite‐Universitätsmedizin Berlin Germany

27. Department of Women's and Children's Health Karolinska Institutet Stockholm Sweden

28. Department of Paediatric Endocrinology, Astrid Lindgren Children Hospital Karolinska University Hospital Stockholm Sweden

29. Istanbul Faculty of Medicine, Paediatric Endocrinology Unit Istanbul University Istanbul Turkey

30. Pediatric Department Kantonsspital Winterthur Winterthur Switzerland

31. Paediatric Endocrinology Regina Margherita Children's Hospital Torino Italy

32. Department of Public Sciences and Pediatrics University of Torino Torino Italy

33. Department of Pediatrics University of Cambridge, Cambridge, United Kingdom Biomedical Campus Cambridge UK

34. Centro de Investigaciones Endocrinológicas (CEDIE‐CONICET), Hospital de Niños Ricardo Gutiérrez Buenos Aires Argentina

35. Pediatric Endocrinology and Diabetes Marmara University Istanbul Turkey

36. Department of Medicine III University Hospital Carl Gustav Carus, Technische Universität Dresden Dresden Germany

Funder

National Institute for Health Research

University of Glasgow

Neurocrine Biosciences

Medical Research Council

Publisher

Wiley

Subject

Endocrinology, Diabetes and Metabolism,Endocrinology

Link

https://onlinelibrary.wiley.com/doi/pdf/10.1111/cen.14796

Reference29 articles.

1. Impact of Hydrocortisone on Adult Height in Congenital Adrenal Hyperplasia—The Minnesota Cohort

2. Congenital Adrenal Hyperplasia—Current Insights in Pathophysiology, Diagnostics, and Management

3. International practice of corticosteroid replacement therapy in congenital adrenal hyperplasia: data from the I-CAH registry

4. Consensus Statement on 21-Hydroxylase Deficiency from The Lawson Wilkins Pediatric Endocrine Society and The European Society for Paediatric Endocrinology

5. Congenital Adrenal Hyperplasia Due to Steroid 21-Hydroxylase Deficiency: An Endocrine Society Clinical Practice Guideline

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