Development of a new social prescribing intervention for families of children with cerebral palsy

Abstract

AbstractAimTo co‐design a social prescribing intervention (the EPIC‐CP programme: Equitable Pathways and Integrated Care in Cerebral Palsy) with children with cerebral palsy (CP), their families, and clinicians to address unmet social needs.MethodThe study was conducted (August 2021 to March 2023) at the paediatric rehabilitation departments of the three tertiary paediatric hospitals in New South Wales, Australia. Eligible participants attended or worked at one of the departments, including children with CP, parents/caregivers, and clinicians. Mixed‐methods co‐design was used in intervention co‐production and prototyping. The project was overseen by research advisors with lived experience of CP.ResultsMore than 200 participants contributed to the co‐design research. Families experienced a substantial burden of unmet social needs. Co‐designed interventions involved systematic identification of unmet social needs with (1) targeted community resources and (2) engagement with a ‘community linker’ who supported children/young people and their families to access health, education, and social services that matched their identified needs and preferences. Research participants co‐developed the programme logic model and prototype. This was piloted in research action cycles and iteratively refined until consensus was achieved.InterpretationWe co‐designed a social prescribing programme responsive to the needs of its end‐users and purposefully developed to be embedded in the Australian health setting. A pilot randomized controlled trial will further evaluate this intervention.