Potential causes of delays in paediatric perforated appendicitis: A prospective interview study

Author:

Trinidad Stephen1,Parrado Raphael1,Hoang Mindy2,Toraman Turk Sinem3ORCID,Unaka Ndidi4567,Beck Andrew F45678,Schondelmeyer Amanda458,Kotagal Meera19

Affiliation:

1. Division of Pediatric General and Thoracic Surgery Cincinnati Children's Hospital Medical Center Cincinnati Ohio United States

2. Department of Medical Education University of Cincinnati College of Medicine Cincinnati Ohio United States

3. Department of Health Policy and Management, Global Health Leadership Initiative Yale University New Haven Connecticut United States

4. Department of Pediatrics University of Cincinnati College of Medicine Cincinnati Ohio United States

5. Division of Hospital Medicine Cincinnati Children's Hospital Medical Center Cincinnati Ohio United States

6. Michael A. Fisher Child Health Equity Center Cincinnati Children's Hospital Medical Center Cincinnati Ohio United States

7. HealthVine Cincinnati Children's Hospital Medical Center Cincinnati Ohio United States

8. James M. Anderson Center for Health System Excellence Cincinnati Children's Hospital Medical Center Cincinnati Ohio United States

9. Department of Surgery University of Cincinnati College of Medicine Cincinnati Ohio United States

Abstract

AimDelays in care may be a driver of inequities in perforated appendicitis rates. The goal of this study was to explore potential causes of delay in care for children with perforated appendicitis.MethodsWe conducted an interview study of caregivers of children admitted with perforated appendicitis to a children's hospital between December 2022 and March 2023. Semi‐structured interviews based on an iteratively revised interview guide were conducted in‐person during the child's admission. All interviews were transcribed, coded and underwent a process of thematic analysis.ResultsWe reached thematic saturation after 12 interviews. The median age for children was 13.5 years, 50% were male, 83% of caregivers self‐identified as White, and one interview required an interpreter. Through thematic analysis, four major themes for potential causes of delay emerged. The first theme of symptom recognition includes delays related to recognising the symptoms, their severity and the need for medical evaluation. The second theme – accessing care – describes delays that occur after a decision was made to seek care until the child was evaluated. The third theme includes delays that occur in making the diagnosis after evaluation. The last theme captures potential delays in definitive treatment after a diagnosis of appendicitis is made.ConclusionWe identify four major themes from the patient and family perspective, each with multiple sub‐themes, for potential delays in definitive care for children with perforated appendicitis. Additional research is needed to further characterise these potential delays and quantify their role in contributing to inequities in perforation rates.

Funder

Cincinnati Children's Hospital Medical Center

Publisher

Wiley

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