Personalized medical information card for adults with 22q11.2 deletion syndrome: An initiative to improve communication between patients and healthcare providers-Reference-Cited by-同舟云学术

Personalized medical information card for adults with 22q11.2 deletion syndrome: An initiative to improve communication between patients and healthcare providers

Published:2020-05-14 Issue:6 Volume:33 Page:1534-1540
ISSN:1360-2322
Container-title:Journal of Applied Research in Intellectual Disabilities
language:en
Short-container-title:J Appl Res Intellect Disabil

Author:

Loo Joanne C. Y.¹^ORCID,Boot Erik¹²^ORCID,Corral Maria¹³^ORCID,Bassett Anne S.¹³⁴⁵^ORCID

Affiliation:

1. The Dalglish Family 22q Clinic Toronto General Hospital Toronto ON Canada

2. 's Heeren Loo Zorggroep Amersfoort The Netherlands

3. Department of Psychiatry University Health Network, and Department of Psychiatry, University of Toronto Toronto ON Canada

4. Clinical Genetics Research Program Centre for Addiction and Mental Health Toronto ON Canada

5. Division of Cardiology Toronto Congenital Cardiac Centre for Adults at the Peter Munk Cardiac Centre Department of Medicine, and Toronto General Hospital Research Institute University Health Network Toronto ON Canada

Funder

National Institute of Mental Health

Canadian Institutes of Health Research

Publisher

Wiley

Subject

Developmental and Educational Psychology,Education

Link

https://onlinelibrary.wiley.com/doi/pdf/10.1111/jar.12747

Reference23 articles.

1. 22q Foundation Australia and New Zealand. (2018).22q‐ordination app: Your personal 22q coordination centre. Retrieved fromhttps://www.22q.org.au/22q‐coordination‐portal. Accessed February 8 2020.

2. Practical Guidelines for Managing Patients with 22q11.2 Deletion Syndrome

3. Comorbidity, healthcare utilisation and process of care measures in patients with congenital heart disease in the UK: cross-sectional, population-based study with case-control analysis

4. City of Toronto. (2020).In Case of Emergency – Medical Information Sheet. Retrieved fromhttps://www.toronto.ca/community‐people/public‐safety‐alerts/emergency‐preparedness/before‐an‐emergency/. Accessed February 8 2020.

5. Practical guidelines for managing adults with 22q11.2 deletion syndrome

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1. Undeleting the voice of people with 22q11 deletion syndrome: A scoping review;Rare;2024

2. Updated clinical practice recommendations for managing adults with 22q11.2 deletion syndrome;Genetics in Medicine;2023-03

3. Updated clinical practice recommendations for managing children with 22q11.2 deletion syndrome;Genetics in Medicine;2023-03