Affiliation:
1. Deutsches Zentrum für Neurodegenerative Erkrankungen (DZNE), Rostock/Greifswald Greifswald Germany
2. Deutsches Zentrum für Neurodegenerative Erkrankungen (DZNE) Witten Germany
3. Department of Nursing Science, Faculty of Health University of Witten/Herdecke Witten Germany
4. Section for Gerontopsychosomatics and Dementia‐Related Diseases, University Medical Centre Rostock Clinic and Polyclinic for Psychosomatic Medicine and Psychotherapy Rostock Germany
5. Section Epidemiology of Health Care and Community Health, Institute for Community Medicine University Medicine Greifswald (UMG) Greifswald Germany
Abstract
AbstractBackgroundCurrently, there is a lack of interaction between research and healthcare practice. As a result, research findings reach healthcare practice only late, and topics relevant to practice are often not known in research. Involving people living with dementia (PlwD), their relatives and healthcare providers in dementia care research can accelerate this process. For inclusion, firm and reliable structures are needed, which are to be established with the help of the Translational Network for Dementia Care Research in Germany. However, there is only limited knowledge about the priorities, expectations and conditions of stakeholders (healthcare providers and dementia researchers) for such cooperation within a network.ObjectivesThe aim is to gather stakeholders' views on (i) future research topics to be addressed within the dementia care research network, (ii) the nature of collaboration within the network and (iii) the facilitating and hindering factors for establishing such a network.MethodsWithin an exploratory sequential mixed‐method study, we interviewed 87 stakeholders within eleven semistructured focus group interviews. The interviews were transcribed, pseudonymized and analyzed using qualitative content analysis. The qualitative data were analyzed with MAXQDA. Based on the qualitative results found in the focus group interviews, a supplementary online questionnaire was developed to prioritise and rank these findings afterwards.ResultsStakeholders prioritized a comprehensible transfer of research results into practice, increased involvement of PlwD and their relatives (additionally marginalized groups such as people with a migrant background) in research and exchange between researchers. Cooperation should preferably occur in a regional context with local contacts, and the latest research results should be made available via an online database. The stakeholders' time, finances and human resources should be considered.ConclusionStakeholders have partly similar preferences and goals for cooperation and involvement, emphasizing that such interaction in a network offers the possibility of long‐term, effective collaboration and added value for practice and research.Patient or Public ContributionFor this study, dementia healthcare providers and dementia care researchers were asked about their perspectives. Their involvement is further elucidated in the manuscript text.
Subject
Public Health, Environmental and Occupational Health
Reference37 articles.
1. PrinceM GuerchetM PrinaM. The epidemiology and impact of dementia—current state and future trends. WHO thematic briefing (Report number: WHO/MSD/MER/15.3). World Health Organization (WHO);2015.
2. Alzheimer's Disease International. World Alzheimer report 2021: journey through the diagnosis of dementia;2021.
3. Stakeholder involvement in dementia research: A qualitative approach with healthy senior citizens and providers of dementia care in Germany
4. Relation between agendas of the research community and the research consumer
5. Knowledge translation of research findings
Cited by
2 articles.
订阅此论文施引文献
订阅此论文施引文献,注册后可以免费订阅5篇论文的施引文献,订阅后可以查看论文全部施引文献