1. Department of Dermatology Reference Centre for Genodermatoses MAGEC Necker Enfants Malades Paris‐centre University APHP5, ERN‐Skin France
2. Department of Dermatology Maastricht University Medical Centre and the GROW School for Oncology and Developmental Biology Maastricht, ERN‐Skin the Netherlands
3. Department of Dermatology Centre de référence des maladies rares de la peau Larrey Hospital Paul Sabatier University Toulouse, ERN‐Skin France
4. Department of Dermatology Royal London Hospital Barts Health NHS Trust London, ERN‐Skin UK