Legal and Ethical Complexities of Consent with Cognitively Impaired Research Subjects: Proposed Guidelines

Author:

Berg Jessica Wilen

Abstract

When science takes man as its subject, tensions arise between two values basic to Western society: freedom of scientific inquiry and protection of individual inviolability.... At the heart of this conflict lies an age-old question: When may a society, actively or by acquiescence, expose some of its members to harm in order to seek benefits for them, for others, or for society as a whole?

Publisher

Cambridge University Press (CUP)

Subject

Health Policy,General Medicine,Issues, ethics and legal aspects

Reference136 articles.

1. Success in Spite of Failure: Why IRBs Falter in Reviewing Risks and Benefits

2. 24. 45 C.F.R. §§ 46.101-.409 (1983)

3. and 21 C.F.R. §§ 50.20-.48 (1993). More guidance at the national level on the meaning of these terms is necessary.

4. “Surrogate Decision Making for Severely Cognitively Impaired Research Subjects: The Continuing Debate,”;DeRenzo;Cambridge Quarterly of Healthcare Ethics,1993

5. 36. Additional protections may also be necessary when the research presents a high risk of harm to the subjects, or when the subject population is considered unusually vulnerable to coercive tactics designed to induce participation.

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