Affiliation:
1. Department of Psychiatry University of Toronto Toronto Canada
2. Centre for Addiction and Mental Health Toronto Canada
3. Institute of Health Policy, Management and Evaluation University of Toronto Toronto Canada
4. Department of Psychology John Jay College of Criminal Justice New York New York USA
Abstract
AbstractAimLived experience adaptation of mental health interventions can help ensure that the intervention is appropriate for the target population. This paper describes a youth‐led adaptation of a self‐stigma reduction intervention for young adults with bipolar spectrum disorders, that is, Narrative Enhancement and Cognitive Therapy.MethodsStandard guidelines for youth engagement were followed. A youth lived experience adaptation lead and a five‐member youth lived experience advisory panel reviewed the intervention and made a number of adaptations to increase its relevance for young people with bipolar disorders. A brief evaluation of the engagement process was conducted.ResultsThe primary adaptations made to the intervention fell into five areas: (1) wording revisions for recovery‐oriented language accessible to youth with a wide variety of language and literacy levels; (2) updating and tailoring to the diagnostic category, with the addition of new quotes describing the lived experience of stigma; (3) integration of a new, engaging graphic design; (4) development of a goal‐setting module, as recommended by the research team; and (5) identification of the role of a peer co‐facilitator. An evaluation of the engagement process showed that the engagement was extremely meaningful for the youth engaged.ConclusionsUsing a youth lived experience adaptation process, young people can make relevant, important changes to a psychosocial intervention. The resulting early intervention materials are research‐ready and are hypothesized to meet the needs of young people with BD in a youth‐friendly manner. Research on the acceptability, efficacy, and effectiveness of the newly adapted intervention will be required.
Funder
Centre for Addiction and Mental Health
Subject
Biological Psychiatry,Psychiatry and Mental health,Pshychiatric Mental Health