1. Reference center for genodermatoses and rare skin diseases (MAGEC), Department of Dermatology; Hôpital Necker-Enfants Malades, AP-HP; Paris France
2. Department of Pediatric Rheumatology; Hôpital de Bicêtre, AP-HP; Le Kremlin-Bicêtre France
3. University of Paris Sud; Le Kremlin-Bicêtre France
4. University of Paris Descartes - Sorbonne Paris Cité; Institut Imagine; Paris France
5. Department of Otorhinolaryngology; Hôpital Necker Enfants-Malades, AP-HP; Paris France