Using social media for patient and public involvement and engagement in health research: The process and impact of a closed Facebook group

Author:

Fedorowicz Sophia1ORCID,Riley Victoria1ORCID,Cowap Lisa1ORCID,Ellis Naomi J.1ORCID,Chambers Ruth2ORCID,Grogan Sarah3ORCID,Crone Diane4ORCID,Cottrell Elizabeth5ORCID,Clark‐Carter David1ORCID,Roberts Lesley6,Gidlow Christopher J.1ORCID

Affiliation:

1. The Centre for Health and Development Staffordshire University Stoke‐on‐Trent UK

2. Technology Enabled Care Programme, Staffordshire Sustainability and Transformation Partnership's Digital Workstream Stoke‐on‐Trent Clinical Commissioning Group Stoke‐on‐Trent UK

3. Department of Psychology Manchester Metropolitan University Manchester UK

4. School of Sport and Health Sciences Cardiff Metropolitan University, Cyncoed Campus Cardiff UK

5. School of Medicine Keele University Keele Newcastle‐under‐Lyme UK

6. Member Governor of Midlands Partnership NHS Foundation Trust Patient Representative Stoke‐on‐Trent UK

Publisher

Wiley

Subject

Public Health, Environmental and Occupational Health

Reference29 articles.

1. Personal perspectives on patient and public involvement – stories about becoming and being an expert by experience

2. INVOLVE. What is public involvement in research?NHS Natl Inst Heal Res.2015.https://www.invo.org.uk/find-out-more/what-is-public-involvement-in-research-2/

3. National Institute for Health Research. Briefing notes for researchers—public involvement in NHS health and social care research.2021. Accessed March 10 2022.https://www.nihr.ac.uk/documents/briefing-notes-for-researchers-public-involvement-in-nhs-health-and-social-care-research/27371

4. Whose voices? Patient and public involvement in clinical commissioning

5. Systematic review of involving patients in the planning and development of health care

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