Development and content validation of the Muscular Dystrophy Child Health Index of Life with Disabilities questionnaire for children with Duchenne muscular dystrophy-Reference-Cited by-同舟云学术

Development and content validation of the Muscular Dystrophy Child Health Index of Life with Disabilities questionnaire for children with Duchenne muscular dystrophy

Published:2018-07-29 Issue:1 Volume:61 Page:75-81
ISSN:0012-1622
Container-title:Developmental Medicine & Child Neurology
language:en
Short-container-title:Dev Med Child Neurol

Author:

Propp Roni¹²,McAdam Laura³⁴,Davis Aileen M²⁵⁶⁷,Salbach Nancy M²⁴,Weir Shannon¹,Encisa Clarissa¹,Narayanan Unni G¹²³⁸^ORCID

Affiliation:

1. Child Health Evaluative Sciences Program, Research Institute The Hospital for Sick Children Toronto ON Canada

2. Rehabilitation Sciences Institute University of Toronto Toronto ON Canada

3. Holland Bloorview Kids Rehabilitation Hospital Toronto ON Canada

4. Department of Pediatrics University of Toronto Toronto ON Canada

5. Krembil Research Institute University Health Network Toronto ON Canada

6. Department of Physical Therapy University of Toronto Toronto ON Canada

7. Institute of Health Policy, Management & Evaluation University of Toronto Toronto ON Canada

8. Department of Surgery Division of Orthopaedics The Hospital for Sick University of Toronto Toronto ON Canada

Funder

University of Toronto

Publisher

Wiley

Subject

Clinical Neurology,Developmental Neuroscience,Pediatrics, Perinatology, and Child Health

Link

https://onlinelibrary.wiley.com/doi/pdf/10.1111/dmcn.13977

Reference28 articles.

1. Population frequencies of inherited neuromuscular diseases—A world survey

2. Diagnosis and management of Duchenne muscular dystrophy, part 1: diagnosis, and pharmacological and psychosocial management

3. Clinical outcome measures for trials in Duchenne muscular dystrophy: report from International Working Group meetings

4. Diagnosis and management of Duchenne muscular dystrophy, part 2: implementation of multidisciplinary care

5. The psychosocial and cognitive impact of Duchenne's muscular dystrophy

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