1. 1For example, see: T. Murray. 1997. Genetic exceptionalism and 'future diaries'. Is genetic information different from other medical information? InGenetic Secrets: Protecting Privacy and Confidentiality in the Genetic Era. Mark A. Rothstein, ed. New Haven. Yale University Press: 60-76.
2. The Right to Genetic Ignorance Confirmed
3. 3Some of these will emerge during the course of this paper, but for a more comprehensive list and further discussion, see Ruth Chadwick. 1997. The philosophy of the right to know and the right not to know. InThe Right to Know and the Right not to Know. Ruth Chadwick, Mairi Levitt & Darren Shickle, eds. Aldershot, Hants. Ashgate Publishing Company: 17-20.
4. 4Exceptions to this are when a patient lacks capacity and/or in an emergency situation. However, in such circumstances, the terms of any valid advance refusal should be respected, if known.
5. 5Available at: http://www.unesco.org/shs/human_rights/hrbc.htm (accessed 10 August 2004).