Social determinants of health for children with cerebral palsy and their families

Author:

Ostojic Katarina1ORCID,Karem Isra1,Paget Simon P.23ORCID,Berg Alison2,Dee‐Price Betty‐Jean4ORCID,Lingam Raghu1ORCID,Dale Russell C.35ORCID,Eapen Valsamma16ORCID,Woolfenden Sue17ORCID,

Affiliation:

1. Population Child Health Research Group, Discipline of Paediatrics and Child Health University of New South Wales Sydney NSW Australia

2. Kids Rehab The Children's Hospital at Westmead Sydney NSW Australia

3. Faculty of Medicine and Health, The Children's Hospital at Westmead Clinical School University of Sydney Sydney NSW Australia

4. Southgate Institute for Health Society and Equity Flinders University Adelaide SA Australia

5. Neurology Department The Children's Hospital at Westmead Sydney NSW Australia

6. South Western Sydney Local Health District Sydney NSW Australia

7. Sydney Local Health District Sydney NSW Australia

Abstract

AbstractSocial determinants of health (SDH) influence health and social outcomes in positive and negative ways. Understanding the impact of SDH on children with cerebral palsy (CP) is essential to improve health equity, optimize health outcomes, and support children with CP and their families to thrive in society. In this narrative review, we summarize the landscape of SDH impacting children with CP and their families worldwide. In high‐income countries, children from poorer neighbourhoods are more likely to have severe comorbidities, present with spastic bilateral CP, and report lower frequency of participation in community activities. In low‐ and middle‐income countries, socioeconomic disadvantage is associated with increased risk of malnutrition, living in poorer housing conditions, not having access to proper sanitation, and living below the poverty line. Low maternal education is associated with increased likelihood of the child with CP experiencing increased severity of gross motor and bimanual functioning challenges, and poorer academic performance. Lower parental education is also associated with reduced child autonomy. On the other hand, higher parental income is a protective factor, associated with greater diversity of participation in day‐to‐day activities. A better physical environment and better social support are associated with higher participation in daily activities. Clinicians, researchers, and the community should be aware of these key challenges and opportunities. Then adopt a range of approaches that target adverse SDH/social needs and foster positive SDH in the clinical setting.What this paper adds Understanding how social determinants of health influence health and social outcomes is a critical step towards improving health equity and outcomes. Approaches are required that target the impact of adverse SDH on access to health care for children with cerebral palsy and that work towards ensuring equity of access for all.

Funder

Cerebral Palsy Alliance Research Foundation

Publisher

Wiley

Subject

Neurology (clinical),Developmental Neuroscience,Pediatrics, Perinatology and Child Health

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