Person‐specific evidence has the ability to mobilize relational capacity: A four‐step grounded theory developed in people with long‐term health conditions

Author:

Zoffmann Vibeke12ORCID,Jørgensen Rikke34,Graue Marit5,Biener Sigrid Normann26,Brorsson Anna Lena7,Christiansen Cecilie Holm1,Due‐Christensen Mette89,Enggaard Helle310ORCID,Finderup Jeanette1112,Haas Josephine1314,Husted Gitte Reventlov15,Johansen Maja Tornøe16,Kanne Katja Lisa1718,Hope Kolltveit Beate‐Christin519,Krogslund Katrine Wegmann20,Lie Silje S.21,Lindholm Anna Olinder1314,Marqvorsen Emilie H. S.12ORCID,Mathiesen Anne Sophie122,Olesen Mette Linnet123,Rasmussen Bodil224,Rothmann Mette Juel2526,Simonsen Susan Munch27,Tackie Sara Huld Sveinsdóttir1,Thisted Lise Bjerrum28,Tran Trang Minh1,Weis Janne29,Kirkevold Marit30

Affiliation:

1. The Interdisciplinary Research Unit of Women's, Children's and Families’ Health, Juliane Marie Centre, Copenhagen University Hospital Rigshospitalet Copenhagen Ø Denmark

2. Department of Public Health University of Copenhagen Copenhagen K Denmark

3. Department of Psychiatry Aalborg University Hospital Aalborg Denmark

4. Department of Clinical Medicine, Faculty of Medicine Aalborg University Aalborg Denmark

5. Department of Health and Caring Sciences Western Norway University of Applied Sciences Bergen Norway

6. Survivorship Unit Danish Cancer Society Research Center Copenhagen Denmark

7. Department of Neurobiology, Care Sciences and Society Karolinska Institute Stockholm Sweden

8. Florence Nightingale Faculty of Nursing and Midwifery King's College London London UK

9. Health Promotion Research Steno Diabetes Center Copenhagen Gentofte Denmark

10. Research Unit for Child and Adolescent Psychiatry, Unit for Psychiatric Research and Clinical Nursing Research Unit Aalborg University Hospital Aalborg Denmark

11. Department of Renal Medicine Aarhus University Hospital Aarhus Denmark

12. Department of Clinical Medicine Aarhus University Aarhus Denmark

13. Department of Clinical Science and Education, Karolinska Institute Södersjukhuset Stockholm Sweden

14. Sachs’ Children and Youth Hospital Södersjukhuset Stockholm Sweden

15. Pharmakon Danish College of Pharmacy Practice Hillerød Denmark

16. Mental Health Centre Glostrup Glostrup Denmark

17. Department of Infectious Diseases Centre of Excellence for Health, Immunity, and Infectious Diseases, Copenhagen University Hospital Rigshospitalet Copenhagen Ø Denmark

18. Centre for Cardiac, Vascular, Pulmonary and Infectious Diseases, Rigshospitalet University of Copenhagen Copenhagen Ø Denmark

19. Vossevangen Medical Center Voss Norway

20. Radiometer Medical ApS Copenhagen Denmark

21. Faculty of Health VID Specialized University Sandnes Norway

22. Department of Endocrinology, Center for Cancer and Organ Diseases, Rigshospitalet Copenhagen University Hospital Copenhagen Ø Denmark

23. Department of Gynaecology, Juliane Marie Centre: Copenhagen University Hospital Rigshospitalet Copenhagen Ø Denmark

24. School of Nursing and Midwifery, Centre for Quality and Patient Safety Research in the Institute for Health Transformation Deakin University Geelong Victoria Australia

25. Faculty of Health Sciences University of Southern Denmark and Steno Diabetes Center Odense M Denmark

26. Steno Diabetes Center Odense Odense University Hospital Odense Denmark

27. Centre for Human Resources and Education The Capital Region of Denmark Hellerup Denmark

28. Klinik for Senfølger efter Kræft, Klinisk Onkologisk Afdeling og Palliative Enheder Sjællands Universitetshospital – Roskilde Roskilde Denmark

29. Department of Neonatology, Juliane Marie Centre: Copenhagen University Hospital Rigshospitalet Copenhagen Ø Denmark

30. Faculty of Health Sciences, Department of Nursing and Health Promotion Oslo Metropolitan University Oslo Norway

Abstract

AbstractPerson‐specific evidence was developed as a grounded theory by analyzing 20 selected case descriptions from interventions using the guided self‐determination method with people with various long‐term health conditions. It explains the mechanisms of mobilizing relational capacity by including person‐specific evidence in shared decision‐making. Person‐specific self‐insight was the first step, achieved as individuals completed reflection sheets enabling them to clarify their personal values and identify actions or omissions related to self‐management challenges. This step paved the way for sharing these insights and challenges in a relationship with a supportive health professional, who could then rely on person‐specific evidence instead of assumptions or a narrow disease perspective for shared decision‐making. Trust in the evidence encouraged the supportive health professional to transfer it to the interdisciplinary team. Person‐specific evidence then enhanced the ability of team members to apply general evidence in a meaningful way. The increased openness achieved by individuals through these steps enabled them to eventually share their new self‐insights in daily life with other people, decreasing loneliness they experienced in self‐management. Relational capacity, the core of the theory, is mobilized in both people with long‐term health conditions and healthcare professionals. Further research on person‐specific evidence and relational capacity in healthcare is recommended.

Publisher

Wiley

Subject

General Nursing

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