1. Department of Dermatology and Allergology and EB House Austria University Hospital of the Paracelsus Medical University Salzburg Salzburg Austria
2. General coordination ERN‐SKIN Paris France
3. Department of Dermatology Medical University Innsbruck Innsbruck Austria
4. Department of Dermatology and Reference Centre for Genodermatoses and Rare Skin Diseases (MAGEC) Imagine Institute Hôpital Universitaire Necker‐Enfants Malades APHP5 Université Paris‐Centre Paris France