Uncertainty, hope, and coping efficacy among mothers of children with Duchenne/Becker muscular dystrophy-Reference-Cited by-同舟云学术

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Uncertainty, hope, and coping efficacy among mothers of children with Duchenne/Becker muscular dystrophy

Published:2019-04-03 Issue:6 Volume:95 Page:677-683
ISSN:0009-9163
Container-title:Clinical Genetics
language:en
Short-container-title:Clin Genet

Author:

Bell Megan¹²^ORCID,Biesecker Barbara B.¹²,Bodurtha Joann³,Peay Holly L.⁴

Affiliation:

1. Social and Behavioral Research BranchNational Human Genome Research Institute, NIH Bethesda Maryland

2. Department of Health, Behavior and SocietyJohns Hopkins School of Public Health Baltimore Maryland

3. McKusick‐Nathans Institute of Genetics MedicineJohns Hopkins University Baltimore Maryland

4. RTI International Research Triangle Park North Carolina

Funder

National Human Genome Research Institute

Publisher

Wiley

Subject

Genetics(clinical),Genetics

Link

https://onlinelibrary.wiley.com/doi/pdf/10.1111/cge.13528

Reference35 articles.

1. Improvement of survival in Duchenne muscular dystrophy: retrospective analysis of 835 patients;Passamano L;Acta Myol,2012

2. Study of Duchenne muscular dystrophy long-term survivors aged 40 years and older living in specialized institutions in Japan

3. The lived experience of hope among parents of a child with Duchenne muscular dystrophy: perceiving the human being beyond the illness

4. Terminal care and survivorship in pediatric chronic illness

5. Varieties of Uncertainty in Health Care

Cited by 15 articles. 订阅此论文施引文献订阅此论文施引文献，注册后可以免费订阅5篇论文的施引文献，订阅后可以查看论文全部施引文献

1. Young Adults and Parents’ Coping With Duchenne/Becker Muscular Dystrophy: A Focus Group Study;Emerging Adulthood;2024-03-26

2. Relationship between Spiritual Attitude and Hope in Parents of Children with Hearing Disorders in Welfare Centers of Hamadan, Iran;Pajouhan Scientific Journal;2024-03-01

3. Factors contributing to emotional distress when caring for children with imperforate anus: a multisite cross-sectional study in China;Frontiers in Medicine;2023-12-07

4. Uncertainties experienced by parents of children diagnosed with severe combined immunodeficiency through newborn screening;European Journal of Human Genetics;2023-03-27

5. Uncertainty in healthcare and health decision making: Five methodological and conceptual research recommendations from an interdisciplinary team;Journal of Behavioral Medicine;2022-12-27

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